I'm new here so I'd like to start out by saying hello. I have not been diagnosed just yet but have been referred to hematologist and my first appointment is 2 months away. I was hoping to get people's input regarding my lab values. My calcium is high...
Hi, diagnosed with myeloma through routine blood test. No evidence of bone disease, most bloods normal but Kappa light chains rising. Therefore I need treatment even though I am asymptomatic. I have had breast and thyroid cancer in past 18 years but...
I was diagnosed Monday with MGUS by my GP and I’m awaiting a referral to the haematologist. I was diagnosed after repeat bloods after they came back with low platelets. Having reviewed all my tests over the last 5 years they have been dropping steadily...
Hi I’m new here. My myeloma was diagnosed last February and I’ve been through chemo and immunotherapy- I’ve just got to the stage of starting stem cell therapy.. Fingers-crossed SCT will end early next year. over the last 6 month I have developed...
Hi Everyone I was diagnosed at the beginning of this year. Have had 6 cycles of DVDT between April and August. I am unable to have a SCT due to risks outweighing the benefits as I am high risk due to genetic changes and other issues. Just watch...
I have just been told that I have smoldering multiple myeloma. I have been told I will be monitored monitored by regular blood test and would not be receiving treatment for between six to twelve months depending upon how the cancer progresses. I though...
Hi just wanted to say hello! I've been having weekly chemo injections and daily meds since April 2023 for myeloma hi hi hand tonight is the eve before I go into hospital for a stem cell replacement! Feeling anxious.
Hi Ive just joined the group as my husband has been diagnosed with myeloma and started the Fitness trial in September, I just wondered if any one else is on this trial and if so how they are getting on
Hi, I have been diagnosed with myeloma after months of scans, test and biopsies. I am 44 years old and have a young daughter so my biggest worry is for her. I am due to talk to my team on the 13th nov to discuss my treatment plan but I know it basically...
Please excuse the long post, I have just joined the online community and I'm hoping to find and give support and friendship from other members. I am 47 and after a emergency admission to hospital for what my GP thought was a blocked bowel I was diagnosed...
