Hi. I just want to say hello. I got diagnosed in December, on my birthday can you believe. I am two weeks in to 6 months chemo, DVRD I think it’s called. I’m glad to have found this place. I’m 62 and my wife is away acting as full time carer for her father...
Hi, I'm not sure what to write. I was recently diagnosed with myeloma. I'm asymptomatic. The diagnosis came out of the blue. I'm struggling so much emotionally, my friends and family are here for me but I feel so incredibly alone. Some days I'm OK, some...
Hi, I was diagnosed with MM on 12th December and have recently received my first 2 treatments. I am in the Canary Islands where I have lived for the past 17yrs. I use the Spanish health system. On visiting my consultant prior to the 1st weekly treatment...
I had a stem cell transplant at the end of August and have had to start my vaccinations again. I managed to get my first Covid before the local centre closed down and am having great difficulty finding where to get the next one. This is despite asking...
Hi i am 7 years after stem cell and am starting to experience quite bad bone pains but my bloods apparently are ok . Knowing that myeloma can return should I now be worried
I think I have lots to say, just don't know how to say it. I change my words for my elderly mum, my aspergic brother, my autistic daughter. I have some nurses that are so cold that have me in a room with people who need a lot more attention physically...
Hi this is akk new to me . Just got my diagnosis last week and find it so hard don't think took anything in can anyone help?
Hi All, I have had two Bone Marrow Biopsies since getting diagnosed, I am absolutely petrified of them, the last one I had about 5 or 6 weeks ago was taken as the end of a RADAR trial which had failed me. My consultant knows how I feel about them but...
Hi everyone, I’ve posted this first in the diagnosis group and then realised it should probably be here instead. I’m Emily and I’m 42 and terrified I may have Multiple Myeloma. I visited my GP in January when I first noticed I have quite frothy urine...
I was diagnosed with. Multiple myeloma in July 2023. I am still coming to terms with the.condition. I have almost completed the first round of chemotherapy 14/16.and had substantial surgery on my back to prevent it collapsing. Does the bone pain...
