Hi All, My husband is suffering so bad with pain in left buttock and no pain relief touching it. So distressing watching him in the pain. You feel so alone with no help. And night time always seems worst . Any ideas or tips appreciated. Had spinal...
Hi all, Some advice please.... My partner is in the middle of a 2nd cycle of chemotherapy for myeloma. I'm having difficulty getting him to drink enough liquid. I keep giving him small amounts of different drinks, hot and cold but to no avail. What...
My husband was diagnosed in august 2021 and has so far been managing his treatment quite well. Unfortunately his dose has had to be reduced due to ankle swelling and achey legs. He now seems terribly weak. It’s disheartening as everything seemed to be...
Has anyone had the new T cell treatment? I have a more aggressive myeloma that the haematologist has struggled to control. I have had VTD, PACE, ESHAP and a stem cell transplant. I only lasted a year post transplant before relapsing. I have started my...
My husband as just started his thirdline treatment for relapsed myeloma, im worried we may be getting close to the end as it has come back aggressively. Is anyone else on thirdline treatment?
With the rapid soaring of the omecron variant I am feeling a need to reduce my exposure. I wonder whether I should be self isolating to protect myself as my myeloma consultant suggests my protection even with 3 vaccinations is still not as good as most...
my husband recently discharged from hospital after suffering with sepsis which he has recovered ...but he didnt recieve any treatment for his myaloma which is worrying .. he missed his phone call appt for the prescription he needed because he was in hospital...
Hi everyone. I'm 49 years. My mum was diagnosed with mm two years ago. It's been tough for us all I've been suffering bone pain, especially in ribs and shoulders increasingly over the past year. I was referred to a Rheumatology consultant. He ordered...
Hi, newbie here looking for advice to support my 69year old mum awaiting stem cell transplant. I want to support her through this. Anyone here been through this process who can help me understand what she might go through and what are the go to products...
Hi all. I've suffered with the above after receiving lots of chemotherapy, but have found quite rigorous exercise to be of great benefit. I had my stem cell at Christmas and am quite young at 50 a not everyone will be able, so just saying.
