Does anyone find themselves really tired with this.i went on a motorbike ride yesterday with the blessing of my doctor to keep my spirits up.However today I was in bed until 1.oo aching allover and worn out. This afternoon I've pottered around and find...
Hello everyone, first time on hear after my diagnosis on Thursday. Feeling numb,angry,scared .Treatment starts on Thursday and thought I'd feel better knowing what is involved but if anything feel worse. Where do you find the strength to get through this...
Hi All, My husband was diagnosed with Myeloma after spinal surgery in December , was then found to have Lung cancer as well. , and he had a Lobectomy in February . He has now started Chemo treatment last week for this. At present not treating Myeloma...
Anyone else really weak and wobbly? My hubby has just had his cells harvested so now its wait time. Neuropathy has been a big problem but now he seems terribly weak - will that improve after SCT?
I am 69 in my second marriage with 2 daughters and 3 lovely granddaughters from my first marriage and a son and 2 granddaughters from my second. For several years I have been receiving blood tests for paraprotein levels recently which had reached 19...
Hi,I'm 5 weeks into treatment for my myeloma and the para proteins are dropping so all good there. Yesterday I felt a bit iffy so spoke to the hospital who did my bloods and it then turns out I've caught covid...Ttheyve cancelled my chemo and steroids...
Well tomorrow Monday will be my 4th week of chemotherapy, I'm starting to see a pattern of Monday to Thursday feeling rough,hiccups, 3 hours sleep per night, hyper and then by sat and Sunday feeling OK but knowing its about to start again. Does it get...
Here we are having gone through my SCT (March 2020) and been in remission for a year and 2months. SCT not a great success, had my review to be informed that my Myeloma was back and that I have a more aggressive form of Myeloma. Great!. I could have...
Hi all . Sorry to seem like moaning Minnie but I thought I would add a quick post . Feeling a little deflated hence the post . Had my SCT in May this year , and apart from having a rough time came through the other side . I had a bone marrow...
Had to have my DeX steroid reduced to 20ml per day mon /Tue because of racing heart.i managed 2 weeks on 40ml .very scary at the time especially being on my own..At the moment the treatment is worse than the condition.
