myeloma

FormerMember
FormerMember
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I have finally had my second leg operation last week slowly recovering can finally put weight through the leg, Now they have told me they want to do the harvest of my stem cells beginning of January.

I am a little nervous right now they want to start the ball rolling on the 27th December my partner wanted to take me away first week in jan but he says my health is more important but I am reall worried about him because we moved to a new village last year so haven't go many friends near by and I haven't been living at my house since march cause of my broken femur caused by cancer that has now developed into myeloma and I only see him weekends , I think he feels very alone and I wish I could help , hes always there for me and id like to be there for him.

I just feel this is a horrible situation to be in and if my leg wasn't broken and I didn't have to have this second op I would of ben home by now but because I still cant carry things from the kitchen etc and I cant cimb stairs by myself im stuck at my mums during the week.

im doing my best to stay positive ive got the harvest coming then the transplant then im hoping after all that I can just start getting on with life a bit better im only 34 and this time last year I was working , driving,gong out etc its just been a tough year.

  • FormerMember
    FormerMember

    Dear kate33, I think you are being too hard on yourself. You have been through so much in a short space of time and still have your sct  to do and the recovery afterwards, this would test the strongest person. I think you are one of the youngest myeloma patients I’ve come across apart from gregg a myeloma forum member and this brings extra pressures. I know you are worried about your partner but I’m sure he would want you to focus on yourself at this time, once you have recovered from your transplant you will be able to make up for lost time. I would encourage you both to speak openly to each other about how you are both feeling, it’s not necessary to put on a brave face all the time, being treated for myeloma is no walk in the park.

  • Hi Kate,

    Sorry for the late reply, I’ve been super-busy getting on with life, which I suppose is a good message for you Kate. I was 36 when diagnosed and it was really tough to deal with mentally. The treatment worked really well for me and I am over 4 years treatment-free now, so I’m really hoping you’ll find the same Kate. You’re in the middle of a really tough period, but all you can really do is keep your head down and plough on, and hopefully soon you’ll be back where you want to be.

    Greg