I’m one month post stem cell transfer for Myeloma. Nausea started a few days later but I still have a lot of sickness. I was discharged on Odansetron and Cyclizine. My consultant prescribed Levomepromazine but it knocked me out so only took it once. A lot of the literature says it only lasts for a couple of weeks. It would be good to know what other people’s experiences are so I can benchmark and have a realistic idea of how long this will last.
Hi again GW2 and well done getting through your first month post Stem Cell Transplant.
The drugs used in the conditioning phase before Transplant day are strong and can strip the lining of he stomach…… I was fortunate be after my first Allograft SCT but I did not have any chemo…… it was a different story following my second Allo SCT….. I was still having nausea and stomach issues for a good 3.5 months then out of the blue everything came ok.
I was not eating very well during this period but I just accepted that I had to push through in the knowledge that things would improve.
My great CNS kept saying that during this period enjoy food is not the priority….. I had to see it as fuel.
The other challenge I had was the most horrendous drug Cyclosporin….. the anti-donor cell rejection drug that was used to stop my immune system killing off my brothers cells….. the smell and taste of these things was a significant challenge.
As for the ice and Melphalan thing…… I kept this going in a different format throughout the first 3-4 months post treatment.
My wife cut up and liquidised fresh pineapple and it was frozen in ice-cube trays…… I would suck on these just before food and this helped make the food less metallic.
This will pass….. I am now 10 years out, turned 70 last week and I am living a great life.
