RE: Elranatamab

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Hi on my first cycle of elranatamab for multiple myloma  really bad lover back and stomach pain hopefully settles down 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read about the side effects you're experiencing while having elranatamab.

    Although I'm not a member of this group I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hi Calton, my mum is in her 5th relapse with Myloma and has just had her 3rd injection on her first cycle of Elranatambub. She’s had a rocky start as she’s the oldest person to have this drug as it’s quite new. How are you feeling now. She has just had her 3rd 79mg injection last night and seems a bit better this time SO far not counting my chickens. It’s a tough road I’ve been with my mum the whole journey and always happy to chat. Hope your pain has got better.   Xxx

  • Hi all 

    Nice to see some postings about Elranatambub .

    I am waiting to start this early next week and like anything it's great to get info from someone who is going through it.

    Nothing seems to work so far

    I was diagnosed with ultra high risk myeloma in May 2023.(T4-T14) Gone through the regular treatments including 2 stem cell transplants. Nothing seems to work but you still have to be on them just in case it takes longer to work and approvals are required sometimes.

    Love to all on this journey.