Hi everyone,
I am a 45-yo male, diagnosed in October. Currently on quadruplet chemotherapy regimen. Planned stem cell transplant in March.
On first diagnosis, imaging revealed that I had a large soft tissue (malignant cells outgrowing from bones) protruding from my ribs on the back of my body. At the time, the doctors said the mass would probably disappear as a result of the treatment. Radiotherapy could be an option but not first preference due to potential side effects. Since then, there have been no updates on this. No more imaging has been taken.
Has anyone else had experience with plasmacytoma? It feels like any further imaging and treatment (e.g. radiotherapy) should be done before the SCT.
Any experience or information you could share would be appreciated.
Wishing everyone well!
Hi Skipper88 and a warm welcome to this corner of the Community although I am sorry to see you joining us/
I am Mike and I help out around our various Blood Cancer groups.
I don’t have Myeloma but I was diagnosed way back in 1999 at 43 with a very rare (8 in a million) incurable but treatable type T-Cell Low-Grade Non Hodgkin’s Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare fast growing type of T-Cell High-Grade Non Hodgkin’s Lymphoma was presenting….. so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
There are a few active members in the group at the moment so let’s look for them to pick up on your post.
As for Stem Cell Transplant (SCT) I have had 2 Allograft (Donor) SCTs….. June 2913 then in Oct 2015, so I know this rollercoaster rather well.
Do click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.
Always around to help or chat.
