Hi All 135 days post SCT and just finished cycle 1 of consolidation treatment. All numbers have been in normal ranges since discharged but after the end of cycle 1 of 15mg lenalidomide, bortezomib and dex my platelets have dropped to 69 and cycle two...
I have heart failure, my heart working at 38% on all my medication for this. I also have multiple myeloma which thr doctors want to start me on chemo. I have been offered DRd for my treatment. Is anyone on here in the same boat as myself? I would...
Hi, I don't say much on this forum but I read most things connected with my Cancer. I live in Tenerife and all my treatment has been through the Spanish health system which is free for pension age residents. I was diagnosed in December 2023 started treatment...
Hi I have my dates for stem cell collection in July is there a timeframe for the transplant after that
Has anyone had SVD chemo & if so how did you get on with it
I’m now SCT + 20. Released from hospital after 17 days and then re admitted to hospital 24 hrs later with an infection! One week later I was discharged and am now navigating the way back. from experience, how long does the extreme fatigue last and also...
Hi everyone, My husband was diagnosed with Myeloma in April 2024 and joined a trial and had 3 months of treatment at the end of last year. Following a few delays due to bed shortage and scheduling he finally had his mephalan yesterday and SCT will be...
Hi I was in remission for just over 2 year until my Myeloma returned in April. My new treatment started late May, consisting of Carfilzomib Dexamethasone & Lenalidomide plus the usual infection inhibitors. I am coming to.the end of cycle 4 and...
Hello everyone, I am now going to start treatment to my light chain myeloma condition. Mid Fen I wI’ll receive my first sc injection of Daratumumab. I am still asymptomatic but with increasingly bad markers. I am expectant to receive the associated side...
I have just started my 5th cycle for MM , tablets & two simple injections the next week one injection , it has been very straightforward and something I find uplifting as the readings drop in a way , few days tiredness in between and back in to repeat...
