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Hi All! I was 46 with 13-year-old-twins when I was diagnosed with Mantle Cell Lymphoma. Fortunately, I've been in remission now for almost 3 years. I just posted a blog on this site that I think will be helpful for newly diagnosed patients and their friends...
My name is Philip. I was diagnosed with MCL at the end of May this year. I have been treated since June with R-CHOP and Cytarabine. my sixth and possibly last cycle starts next week.
I’m being bounced between haematology and neurology. I’ve had MCL since 2020 and successfully had 8 x rituximab and was in remission for approx 2 years. Now officially in relapse although I have some awful symptoms, the nodes aren’t big enough to hit...
I was diagnosed with stage 2 MCL January 23 and was about to start Chemoimmunotherapy (Nordic) when my team changed their mind and decided Watch & Wait. I still have not started any treatment and have had over a year of feeling ok while the cancer progresses...
Hi my name is sue I'm 63 and was first diagnosed with Idolent mantle cell lymphoma in 2021 which resulted I me having a splenectomy early 22..was monitored but unfortunately the disease decided to come back very aggressive so only 20mths remission. ...
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
How is everyone getting in taking these. My husband in 2nd week and no energy, so weak and just wants to sleep. Is this normal and will things get better?
Hi, My dad got diagnosed recently and so far the information had been really poor so we have no clue where we stand. He got a letter the other day with the above written and that they had a MDT and they won't do radiotherapy and will review in 3 months...
Well, I was a touch overly optimistic in my last post. Turns out the lung clot was a symptom of the mcl returning. So now I’m being advised to start ibrutinib along with the blood thinners etc. I’ve read a bunch of somewhat scary info on the drug...
I was diagnosed with Mantle Cell Lymphoma five years ago and have been monitored with blood tests and visits/phone calls since then - I am 72. Overnight, about five weeks ago, a large lump appeared in my groin so made an appointment for an examination...
