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Is anyone put themselves forward for the ZEBRA clinical trial?
I am meeting my consultant this Friday. I have been in remission for about eighteen months but about two years since I was first diagnosed with MCL. I now have, what to me feels like, a table tennis ball growing under my right ear. I had an ultrasound...
Hi, I have just been diagnosed with stage 3 mantel cell lymphoma. I am due to see the Dr on Monday, but I saw the results from my PET scan with the diagnosis on Wednesday. I was in belief from a previous CT scan and Ultra sound that it was low grade lymphoma...
Hello all, Following an unidentified possible viral infection that started in June 2024 and totally floored me, I was diagnosed with Mantle Cell Lymphoma early December 2024. I had a lot of blood tests, scans which revealed an enlarged spleen, and a...
Hi all, My dad was diagnosed with mantle cell in June and has just finished his 6 rounds of chemo, in preparation for a stem cell transplant at the end of January. Throughout we have been told that the stem cell would be the difference in relapsing...
My partner has just been diagnosed with mantle cell lymphoma today. He's 49. I'm so terrified to find out what stage it's at and what his prognosis is. We have 2 little boys. I cant bear seeing their happy faces knowing that they could lose their Dad...
Hi all. diagnosed with MCL in November. It’s slow growing. Lumps in my lymph nodes and zero further symptoms. gas bloods. Had scans and it’s seemingly just there. next appointment next week with next steps. I feel physically well. But mentally done. The...
My mum was diagnosed with mcl low grade stage 4 sept 24 and is on w&w but everyday her mental health is getting worse its constant all day every day, she feels her life is over she will never get it back or feel good again. She is scared of treatment...
There was a guardian article about the success of car T-cell therapy in treating lymphoma cancers. Does anyione have any info on such a trial in this country? Such a shame one only hears about these things from the newspapers and not from ones cons...
