Hi, I have just been diagnosed with stage 3 mantel cell lymphoma. I am due to see the Dr on Monday, but I saw the results from my PET scan with the diagnosis on Wednesday.
I was in belief from a previous CT scan and Ultra sound that it was low grade lymphoma so the new diagnosis has come as a shock.
I’m 55 and have custody of my 9 year old grandson so am petrified of what’s going to happen and the thought of telling him is breaking me. I know I shouldn’t google, but it’s human nature isn’t it and to read the prognosis is 5-10 years is unthinkable.
I’ve read it’s a rare cancer and usually affects more men than women and generally older so trying to get my head around that to as I’m a 55 year old Female!
I don’t have any symptoms apart from the lumps in my neck which I went to the Drs about a year last April, was given a blood test and told all fine.
I went back again this year as they were still there and was sent for an ultrasound scan on the 1st April and within 2 hours it was all systems go. I’ve had bloods, 2 x chest x rays, CT Scan, neck biopsy and a PET scan so far.
Any information that anyone can give of what to expect would be really helpful. I definitely cope better with facts than living with the unknown.
I so wish I hadn’t seen the diagnosis on Wednesday before seeing the Dr as my head is all over the place now with worry about my future and Monday seems so far away!
