Car T-cell anyone?

Hi again seasidepeter, CAR-T has been used across the UK for a few years now and is part trips stages and is a go to treatment but it is only available to a few types of Lymphoma Types.

This is a LINK to the NHS information for England but CAR-T is being done in Scotland but at the moment it is mainly used for DLBCL and we have had a few members in the DLBCL group who have successfully went through the treatment.

Stem Cell Transplant tends to be to go to treatment when things develop.

Thanks Mike...I'm always looking for new things as apparently I'm too old (how very dare they!) for a stem cell transplant. 

On another subject and just for info  - immune-compromised  friends in both Somerset and Cumbria have had fourth covid jabs as part of a trial which - they've been told - will not now be rolled out nationally.

Meanwhile I have two more weeks to wait to be told whether I can continue with rituximab maintenance, or whether it is doing more harm than good. Never mind Godot - all this waiting is tiresome.

I am now able to get my 4th vaccinations as of Monday as I am 12 weeks post my 3rd. Will start pushing the system next week but may just rock up to a walk in centre and ask to get it

I just heard from someone who has just done exactly that. He was asked to come back witgh a letter proving that he was clinically vulnerable, and they'd "see what they could do".

He went back with one of those delightful government 'don't bother shielding even though you are clinically very vulnerable' letters - and they gave him a fourth jab.

What a system...and thank goodness there are sensible people still at large!

I have to say that the term shielding in the early days of the covid unknown was logical but now it has become a weight for people to carry.

Yes I was at risk in the early days but with how the vaccination program has been rolled out, the wider awareness of all infection risks (there has been less problems with the normal winter bugs over the past two winters) and the availability of treatments for us CEVs I am back to being more at risk from Measles!!!

I have had two Donor Stem Cell Transplants but can’t have the live MMR re-vaccination. 

In the late 60s the Measles vaccine was introduced and the UK gained ‘measles-free’ status in 2016!!!!

But the UK lost its ‘measles-free’ status three years after the virus was basically ‘eliminated’. Cases of the potentially deadly infection have been growing year on year with too few people now being vaccinated.

So since my first Stem Cell Transplant back in June 2014……. I was shielding before shielding became a ‘thing’……. but still able to define how I live not let fear define me

I have been told it will be an option for MCL   What I don’t know is if it will be used instead of Stem Cell?