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It's been a while. Last couple of months my neutrophils were low. So, Filgrastim injections which seems to help! Also my immunoglobulin is very low so, tomorrow starts my first IVIG. Hopefully this will help my chronic sinusitis which is extremely annoying...
Morning all Not been on here here for what seems like ages ( sorry ) but i'm now 5 session down with 1 more to go in couple of weeks . It's been a trying time but i'm getting through this , i have had 3 sessions of the rchop where i was in for the...
Hi I’m John and I was diagnosed with the MCL in December 25 and Started R-CVP in July 2026. I will start My next course treatment later this month., My side effects of the Treatment to date is extreme lack of energy and neuropathy in hands and feet caused...
Hi, I'm new and was diagnosed with mantle cell lymphoma 06/02/26.
Hi all...or anyone. I've been on ibrutinib for a year now following Nordic protocol. Stem cell was ruled due to age (81), and I have a severe reaction to rituximab. I'm wondering - have any readers been on ibrutinib for longer - and if so are there...
Where do I start. Well went to A&E in October 2024 because of back pain and abdomen like a swollen house brick. Doctor immediately ordered scan and then was called into side room to be given devastating news that I had MCL, no cure but treatable. Refused...
Evening all Its taken me a while to post on here after my diagnosis back in June-25 . So my journey is starting to kick in i think now .Having been given the news in June-25 i have now been told i am on a watch n wait as it is low grade at the moment...
Hi all I Was diagnosed with MCL back in August 2024 which was picked up from a biopsy taken from a bowel polyp. I had no symptoms so a bit of a shock. My local hospital was very poor in not only telling me what type of lymphoma I had but also referring...
Hi, My Dad just started maintenance treatment of Rituximab every two months for two years. He is, I am happy to say, in remission after 6 rounds of chemo, which ended 4 months ago. Has anyone else been through maintenance Retuximab? Would be really...
I was just wondering has anyone on here beeen diagnosed with stage with stage 4 mantle cell lymphoma with a TP53 mutation, how has your journey been?
