Hi everyone, this is my 1st comment on here as I didn't know what to say or how to ask for support. I'm not entirely new to having cancer as I suffered stage 3 bowel cancer in 2011 which required a number of operations and Chemo-Radiotherapy before full bowel resection then long Chemotherapy in 2012 afterwards. This March I was diagnosed with CMML Leukemia (thought to have been caused by my previous treatments) and a month later I was diagnosed with SMZL Lymphoma! I'm told both of these cancers are relatively slow but incurable so I am classified as watchful waiting but not sure what we are waiting for to be honest.. It will be March 2023 before they can take another bone marrow sample to establish how long I've got left. I am a 64yr old man and feel a bit lost despite the support of my wife and grown up children.
Hi again Nev as you my know CMML is rather rare but let’s look for anyone with experience to come along.
Do try putting Chronic myelomonocytic leukaemia or CMML into the search tool, hit ‘anywhere’ and see if there are any posts you can reply to.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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