I have recently been diagnosed with Pancytopenia. I have no other symptoms except abnormal low blood count. I am about to see a consultant about it as the numbers have been abnormally low for last 5 months.( All blood cells group's numbers are lower...
Hi all, Just wanting to ask others to share their symptoms pre/post diagnosis is absolutely fine - I feel it may help those who come looking and wanting to hear personal stories - like myself. I am new to all of this and google really doesn't give...
I just want to drop in past to wish all our new and long standing group members and their families a healthy and safe 2023
Hi, I joined this community early December. At the time we thought my other half had CLL. Unfortunately, we received the devastating news yesterday that he has T-Cell-Pro-Lymphocytic-Leukaemia. Apparently, this type of leukaemia is aggressive and rare...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi all, im 32 mum of 2 boys 10.7. I was diagnosed with CLL on the 27th May 2022. I’m totally blindsided I have no idea what’s in front of of me, what to expect. I haven’t told my children yet until I have more answers I wouldn’t even know how to start...
Surely I can't just give up. AML TP53 has returned to be resident in my bone marrow. I was in remission since Jan 2022 and on track for a Stem Cell Transplant but I am now told thats off the cards and nothing else can be done to treat relapsed AML...
Hi anyone else had this happen, I was diagnosed with Acute Myloid Leukaemia, Severe Neutrapina and MDS that was a month ago! The consultant advised I get my things in order, inform my wife and children and take everyday as a bonus as I didn’t have long...
My son has AML diagnosed 2weeks ago his chemo is being delayed due to spiking temperatures and infections in his mouth. He is due to have 10day intensive chemo should I be worried that it's not started ? I am at my wits end don't feel I can cope much...
Partner diagnosed with aml has had a few rounds of Chemotherapy now requires Stem Cell transplant, found 2 matches but transplant has been put back twice due to issues with donors has anyone had a similar experience, is this normal we built up to this...
