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Hello This is my first post. Diagnosed with kidney cancer August last year. Full nephrectomy. It all came as a big shock and surgery happened very quickly. A few months after surgery my mental health started to decline. I also suffer severe bowels...
Hi, My dad has been on cabozantinib since Friday 3rd April and is now really struggling with extreme sores on hands and feet, he has been prescribed diprobase to help but it isnt doing much. Does anyone have any recommendations of anything that could...
Hi everyone, I've been on immunotherapy Atezolizumab since September 25, every month I noticed another increase in my weight and I wasn't overly worried as I know my weight can yo-yo a bit. At the start of the year I had to have a break from treatment...
Hi everyone, I had a radical open nephrectomy 7 weeks ago after a CT scan showed a 80mm tumour on the right kidney. I am a 51 year old woman with no health issues until now! Keen to get back to my normal life, going back to work and exercising (swimming...
Hello everyone. New here. A month ago I had a routine annual medical check at work and the echo showed a mass on my left kidney. Went to consult a urologist at the hospital, urine test and blood test and consultation. He said the mass is around 2cm...
May 2023 I had a diognoses of chromophobe renal cell carcinoma & had my left kidney removed as had a 14cm massage on it, was told all cancer had been removed & id have yearly scans, all was fine till july 2025 when I had to have a scan for an unrelated...
Keen to hear people's experience on Pazopanib. 800mg knocked me sideways. Now down to 200mg but still multiple side effects. Had a break but tumors grew. Anyone been on intermittent dosage, every other day or two weeks on two weeks off? Love to hear
Hi I’m 7 weeks post op following a radical nephrectomy on my left kidney which had a 11 cm mass. I had my follow up last week and was told it was chromophobe renal cancer which was completely removed so no further treatment needed. I’m hugely relieved...
Hi I’m new here my husband has recently been diagnosed with stage 4 kidney cancer which has spread to his renal glands not sure if any where else yet waiting to have a biopsy then a appointment at Weston park what I’ve read online isn’t very positive...
Hi all been a while since i posted here, I had a radical left nephrectomy with removal of the lymph nodes and left renal vein back in July 2023, found out it was advanced stage 3 RCC (I was close to Stage 4 according to my surgeon who did my surgery the...
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