May 2023 I had a diognoses of chromophobe renal cell carcinoma & had my left kidney removed as had a 14cm massage on it, was told all cancer had been removed & id have yearly scans, all was fine till july 2025 when I had to have a scan for an unrelated issue which shown id developed a lung nodule, ( hadnt show up on my yearly ct scan in nov 2024) anyway was told id have a scan 3 months later which was tied in with my yearly scan which I was due in nov 2025 which it had grown 1mm, then march 2026 I ended up in a&e by ambulance due to severe pain in my hip & groin area ct scan shown id fractured my pelvic bone & id done this turning over in bed as was 3am when I woke with the pain & as this shouldn't happen without trauma ( im 49 ) & my history of cancer i had to have mri which shown tge cancer had spread to my pelvic bone weakening it resulting in thr fracture, ive since had a none scan nothing else shown up thankfully & jyst recently had PET scan & due to go back to oncology Dr beginning of May, , he has said of 2 plans, 1st ideally to contact Birminham hospital to get the tumour removed & reconstruction pelvic bone then radiotgerapy on lung nodule as recent ct in March shown another 1mm growth so the dr thinks the nodule is also cancer, & once ive healed from surgery then chemo, its very scary that its niw classed as stage 4, not curable but treatable, has anyone been through military situation where its spread to pelvic bone & had surgery to removebit? How did it go? Whats wa the recovery like? Sorry for the long essay.
Hello shellyBon
My name is Steph and I’m part of the team who look after the Online Community here at Macmillan. Thank you for being part of our Community and supporting other members along the way, although I am sorry that cancer has brought you here.
It sounds like you have been through a lot over the last few months and it's positive that you're looking for support from people in similar circumstances. We know it can be really helpful to be able to speak to others, share your experience and find support.
Whilst you're waiting for replies from other members, I'm here to help you find some further support.
In addition to the kidney cancer forum, you might want to join the living with incurable cancer forum. It's a busy place, with people of all ages facing similar experiences.
Do you have any other support around you right now?
We also have a Macmillan Support Line if you are needing further support, have questions about cancer and treatment or would like to talk things through with someone who is there to listen. Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.
Macmillan's pages on kidney cancer offers information to anyone affected by kidney cancer and lists other organisations here to support you.
I hope that you'll also hear from other members here, please do keep chatting on the forums.
Please do let us know if you have any questions or need further support with anything at all. I hope the Community helps to show you that you don’t have to go through this alone.
Take care, shellyBon
