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Hi I am Dave and have Renal cancer with cervical spine and thoracic spine metastasis I had life saving surgery a year ago removing my C4 and having it replaced with a metal cage and supporting rods from C2 to C6 i have had radiotherapy to my neck...
Hello, My sweet 2-year-old boy just got diagnosed with Wilms tumor. I’m absolutely shattered, devastated, and terrified. He’s had 2 doses of chemo so far but is running a fever again (he had fevers before the diagnosis too, I wonder if it could be...
Hi, my husband started a 60mg dose of Cabozantinib two weeks ago. No side effects so far but was wondering when others started to get them and if any ‘eased off’ after a while? My husband was on Pazopanib for two years and the side effects weren’t good...
After radical nephrectomy in 2023 for RCC to right kidney, I then had 12 months of Pembro. Was doing well, limited recovery from other ailments although medically retired at 52. Fast forward to 2025 when had 'cyst' to scalp. After paying privately to...
My wife had her nephrectomy performed in July last year and there are times now when her heart rate is quite a bit lower than it was before the op - going down to low 60s bpm. She'll be 70 this summer and although she can be reasonably active, she doesn...
Hiya, new to the group … just saying ‘hi’ I have stage 4 RCC… I had my L kidney removed in June … I was referred to Guys as the cancer was creeping to the renal vein…. I thought I had arthritis in my left knee, but following my kidney surgery I was...
Had a partial nephrectomy last year, told the op went well. Clear margins, analyzed cancer as aggressive (so glad I didnt opt for "keep an eye on it". No one talked about immunotherapy at the time. Went for 1st checkup CT scan last month. No news...
I am happy to find this forum so that I can get more information and hopefully feel a bit more positive about upcoming surgery. Last year I turned 60, was made redundant and decided to take early redundancy. In October I had a heart attack and had...
Hi All, for some reason even though I could see all posts before, somehow I don't see much. some of you might remember me from last year. Had my procedure in June 2024, full nephrectomy, left kidney after 8cm tumour was incidentally found in April 2024...
Hi All I found this forum a week ago and only now plucking up the courage to post. I had an issue with may back in early 2025, the MRI scan found an alien attached to my right kidney. I was sent for a CT scan in May 2025 and the consultant said it was...
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