After radical nephrectomy in 2023 for RCC to right kidney, I then had 12 months of Pembro. Was doing well, limited recovery from other ailments although medically retired at 52. Fast forward to 2025 when had 'cyst' to scalp. After paying privately to get it removed in Dec 25 as NHS wouldn't help saying it was cosmetic, it turns out as being RCC cancer same as my kidney. Lump regrowing and Dr's are baffled at this rare occurrence. Has anyone on here had a metastasis to scalp or know of anyone and what was your treatment plan going forward?
Hopefully will get it removed again but given options of having cabo and nivo going forward so I am trying to find out about these as a forever treatment to prevent any other mets.
Any info would be appreciated.
