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Hi everyone, I was told I had suspected TCC early last September. I am now 12 weeks post Nephroureterectomy and finally had my follow up appointment with the consultant. The histology showed it wasn't cancer at all. They don't really know why but basically...
Dear All, just to say a quick "Thank You" to Mumm for her frequent postings - my wife Val is on the same journey as Mumm, so her experiences have helped immensely. Val was diagnosed last March (22) but didn't start her treatment until August. Naturally...
My partner saw oncologist on Monday . He was on tivozanib. Now he has been put on Cabozantinib. It’s supposed to work better on the bones. Radiotherapy isn’t an option anymore. Everywhere but his bones the cancer has decreased. Is there anyone who has...
Hello Everyone Remember @gragon? anndanv posted this update in the incurables group: I am so sorry to let you know that I have had a message from Ian's wife (Gragon on the site) has died peacefully in St Catherine's Hospice in Scarborough. My husband...
Hi everyone, I'm Eliza from the Community team. I wanted to highlight that Ellie has shared her story on Community News about her experiences of getting diagnosed with kidney cancer and coping with side effects. She's shared her story as a video and...
Evening everyone, my 76 year old had his kidney out six years ago but the cancer has been increasing again and been told by nhs the drugs are not working so taking him off them completely. Just wanted to know if anyone has any ideas / advice what to do...
Evening everyone, I'm six weeks post op after a right radical nephrectomy. I've been healing well so far until the last couple of days. In the past 48 hours I've had several excruciating stabbing pains in my right side, I'm due to follow up with my consultant...
So today I have submitted a complaint to my hospital. I was diagnosed with a tumor on my kidney in November 2021, in 13 months I have seen a consultant once. I have had 2 CT scans. I had a ultrasound in November because of radiation. It's been 10 weeks...
Hello everyone Was diagnosed with Kidney cancer between Xmas and New Year. Got an appointment to see the consultant this Thursday x
Hi, I am starting on the combination of Avelumab and Axitinib at The Christie in two weeks time. I would be very happy to hear feedback from anyone who was on this as a trial, (Javelin Renal 101 ?), or is about to start on this soon....Especially about...
