Hello. I have stage 4 Kidney Cancer

Hi again. Is it the palmar/plantar syndrome? I have that with my Axitinib and find it's where I have hard skin (hadn't realised I had any-not obvious) that is really sore so I have urea cream and a podiatrist, neither of which help! My best solution is supportive sports socks. I rarely go out but when I do my trainers laced tightly helps too - my feet seem to like constriction. I use Boots peppermint and marshmallow moisturiser as peppermint is supposed to hep. So is asparagus but I haven't tried that!! I'm too lazy to try soaking my feet - epsom salts & rhus tox are supposed to be good too but I don't get round to trying. I just tend to sit with my feet up most of the time. I put up with the hands as they aren't so bad. But my syndrome is more soreness than swelling... Hope you find something that helps

I don't have tiredness. I sleep 12.30 to about 6 and have bags and shadows under my eyes so look tired but don't drop off! It's good to hear you can carry on, even at a slower pace, and day to day being generally good is excellent news. I should be inspired by you and do more so I will try! x

Chillamum, I hope you have a good day today.  xxx

Thanks Fedupperson. My younger son has flown up this week so it is so good to have him here. I will make myself more conscious of that and how lucky I am. My biggest failing is that I see/feel/dread the worst always and I need to change that!  I wish you a wonderful day too x

Call me Dawn. Am always here if you need to chat..   Cancer can be a lonely game.   x

Oh gosh dorry to hear your feet are giving jyou so much bother. Is there anything they can do?

lol i think we all have those bags. Yes Im bery hrateful. Just be happy  x

Thats great. I hope you have a lovely time togethet

Thank you! Have a great weekend I hope! 

Hi chillamum ,  kidney cancer UK have a great support group . I think they did some quite regular meetings precovid in Scotland but now it's mostly online . I'm sure they'll get back to face to face meetings soon . It could be a really good opportunity for you to talk to others that understand and it's a great place to get advice for counteracting treatment side effects . Best of luck with your treatment 

Thanks Wcd - I have seen a Facebook support group but am not a fan of facebook. As I am not in an well-populated area I am not really expecting any face to face. Had hoped to find someone else on my treatment of Pembromizulab + Axitinib but that would only be Scotland anyway as England & Wales NHS rejected that treatment due to cost.

Hope you are going along as well as you can and thank you for the kind response. Take care!