Hello. I have stage 4 Kidney Cancer

Hi Chillamum

Had the immunotherapy for kidney cancer but have lung too. Where on the west coast are you?

Hi Divine Ms M!

Thank you for making contact. Is it kidney cancer in your lungs? Surely not unlucky enough to have kidney cancer and lung cancer too. When were you diagnosed? How are you doing?

Hi Cillamum

Afraid not...it was get one freeI was diagnosed about a year ago and doing ok thank you. My head has calmed down a lot as I was a mess when first diagnosed which the folk here told me was normal. How’s you?

NOOO! you have kidney and lung?

I'm new to this & just realised I could read your profile. So sorry you've had such a bad time. I have had 3 scans; the original then March then June. Next is in 3 weeks. All I seem to do is hold my breath between the scan results and don't have a life at all! So I know the horror of waiting. When I was diagnosed we hadn't known how long so my husband took over walking our beagle and doing the shopping so I don't have much to do. Fill my time with puzzles, reading and a (very) little gardening. I also spend the majority of the day worrying about whether I can feel the cancer progressing or not! I look well but put that down to being overweight and staying that way by eating lots of fatty and sugary foods! My main grouch is I have a very sore big toe which stops me walking properly and feel that's not being taken seriously as I'm stage 4...

Are you still waiting on the scan results? Let me know...

Chillamum x

Yup!

Oh dont worry about that-chatting much better. The waiting sucks doesnt it, I was living scan to scan and it felt like I was sitting around waiting to die. Now Ive taken back some (not all) of my ‘js’ and actually feel better for it. So no round the eorld cruises or anything just trying to fo normal as farr as I can. Oh yes I know that feeling! Ive done something to my back and my first thought was its the cancer

im curvy too and theres not much a donut wont solve! Get them to scan your toe just for peace of mind!

got my results and the pleural fluid has slightly progressed but the rest still for now. What about you?

is it ok for care where you live? I was an incomer in Laide

sylvia x

We're on the Cowal peninsula so go to the Beatson in Glasgow. There are two part time Macmillan nurses in the area but I kind of save that rather than cause a nuisance in a small community. The Beatson nurse was fed up with me and actually hung up on me a few weeks ago so I try not to ask anything now - save it up for the next results and have a face to face. Long round trip with ferry but gets me out! Sitting around waiting to die sums it up but how did you break out of that? 

So the results are mixed - that's difficult to guage when is the next step? Another scan? Mine are 12 weeks apart...

xx

Same, every 12 weeks.At some point there will me more chemo but thats for when things progress a lotas that will be my last chemo