Hello. I have stage 4 Kidney Cancer

I think by realising thats what I was doing but then getting back to’normal’ life as far as I could. My other half has been fantastic although we dont live together(long story) but I was the ‘patient’ I guess for me thats ok in a get well situation but thats not what this is so I suppose I try my best to ignore it!

Are you in the incurable forum too?

I hadn't seen the incurable forum so will have a look. Admire you for getting on with "normal" life. Do you have friends/hobbies nearby? Is it far to your hospital?

I have a couple of friends not too far away and the hospital is about 1-2 hours away depending on traffic. I have a small group that i run which has been online since covid. Ridiculously I miss work. I was a bit of a workaholic I suppose.You?

I retired as an accountant a few years ago but did part-time training and customer services which suited me. I was needed late autumn to early February which fitted well with my gardening and spending a few weeks in France. I kind of miss it for the buzz and being in contact with people but I resigned within hours of being diagnosed! How are you day to day? In pain or discomfort? Can you do most things? Hope so!

Hi, Had radical R. Nephrectomy July 1st.  Had to lose lymoh nodes , adrenal glands and quite a bit of surrpunding tissue.  Ha! You would think my bellly would now dip in, not bulge out! 

Was a Stage 4, following missed diagnosis/ very delayed treatment.  

Was really worried as to how I would cope post op. as have a number of other ' not fun' conditions...but physically it wasn't too bad.  Everyone thinks I look great.  The stress of late diagnosis and being downright lied to is the hard part...but I have nothing to moan about compared to many of you.  xxx

Similar story to the sore feet. 

You will find many side effects

Enjoy the food while you can. 

I had up from 2-to 6 Immodium a day for months, Fortasec is cheaper. 

Foid went out the window

Try the foot plasters Compeed.

They worked for me .

Day to day is good really. I quite often drop asleep for no reason but figure thats no great hardship. I still drive and do most things just slower as breathing a bit laboured at times. At the moment my hands/feet are deollen but they think it may be a late reaction to trestment but dont reslly know so Im investigating a homeopathic solution. How about you?

Hi Cliff59

Compeed sounds like a good tip - I will get some in, thanks. Reading your profile - looks like good news about the tumours going/shrinking so I hope you can stay positive too 870 days sounds really encouraging. Yes there are bad days so we have to hope tomorrow is better don't we. I have been told that the side effects mean the treatment is working so hang on to that... Keeping everything crossed for you Cliff59!

Hi Fedupperson

Sounds like they are right on top of your diagnosis so that has to be good. It's really hard to look forward, not back. It's a failing of mine and I know the anger/resentment etc just makes me worse - but how to stop it...

Glad to hear you look great so do hold on to that...

best wishes to you