Hi everyone, I hope you don't mind me posting here. We shared a blog today, all about the wonderful support and connection people can find in this group. We just wanted to let you know since many of the quotes used came from this forum. Blog link below...
Hello Am new here. I was diagnosed with Kidney Cancer late last month. Am very worried even do I place my case in GOD hands. Am having a radical nephroureterectomy on the 7th of June. I had no symptoms till it was to late, I got a nasty UTI early...
I have advanced kidney cancer which has spread to my hip. I've had radiotherapy on the hip tumour which has reduced it's size and relieved some of the pain. I've also had 3 sessions of immunotherapy with a combination of Ipilimumab and Nivolumab which...
Hi all, Three weeks ago today i had a radical nephrectomy/My right kidney removed. I'm gradually feeling more comfortable and I sleep through the night now. I've walked a mile each of the last two days. I'm almost able to walk upright. The scars are...
Hi I have just been reading some lovely threads about the above and they seem to have stopped. How is everyone doing? I am on Avelumab and Axitinib and have been on it since late December 21 I have sore feet which Is responding to Uddely smooth and...
Hi everyove Suffolkflyer here. I am afraid that after all this time l still randomly find different contact methods. So not sure whether this will reach an appropriate area l am "confused .com". Never mind. I finished Gem/ Cis chemo for Stage 4 kidney...
Hi, My husband (48) is severely sight impaired and we have recently found out he has early kidney cancer (4.5x2.5cm tumour). He has been put forward for a partial nephrectomy in 5-6 week's time. We are of course very worried, but also realise how lucky...
My partner has kidney cancer. It’s not curable. It spread to his spine and he has had operation to remove tumours and lesions which weren’t malignant. He had radiotherapy on upper spine. I am finding it very difficult at moment. He went out on Monday...
Hi I’ve been on immunotherapy since November 2021, which consists of 5mg of Axitinib twice a day and Avelumab once a fortnight, I was doing really well until a few weeks ago when I couldn’t eat anything without having diarrhoea straight after, long story...
So……tomorrows the day when I have my radical nephrectomy……..and I am trying to fill my mind with positive thoughts….despite being anxious. So I thought it would be a good idea to share some of them…… I am fortunate to be offered an operation as some...
