Hi I have just been reading some lovely threads about the above and they seem to have stopped. How is everyone doing?
I am on Avelumab and Axitinib and have been on it since late December 21 I have sore feet which Is responding to Uddely smooth and some cheap 99p from Home Bargain. The treatment seems to be playing games with with a rash that is a bit like a mozzy you swot it with cream and it pops up somewhere else , swot it again and pops up again it’s not painful just a nuisance so given up now.
Other than feeling a bit wiped out after treatment I am coping fine but my main problem is muscle /joint pain in my back and knee , my legs feel like lead at the moment and I am super scared and emotional . I hope that this is one of the phases that seem to come and go. Has anyone else had these problems? How are others feeling?
best wishes
Trish (aka Squidgy Hug)
Hi Trish
I've used the search function in the group to look for previous posts which mention Avelumab and Axitinib and found these. Hopefully some of them are the posts you're referring to.
If you're looking for previous posts which you have made or replied to then click on either your username or avatar and then select 'activity' on the page that comes up. All your previous posts will be there Alternatively you can follow these instructions.
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Hi I'm on the same treatment and yes out the blue my feet are.painful.espescially my heals find standing on cold floor helps lol and itchy skin seems to move from different areas each day let's hope its all worth it hey take care and good look x
Hi Chester fc I am playing chase the rash and itch too , it’s like a flipping mozzy you think you have swotted it and then it pops up elsewhere . My beaks are really painful too ,I am constantly massaging foot cream. I asking had cracked feet just under my toes but ‘Udderly Smooth ‘ moisturising cream helped with that. I wonder how many others are on the same treatment. As you say it’s all worth it and we should be thankful that the treatment is there. Take care of you too and hope all goes smoothly for you , give me a shout any time x
Hi , good to hear from you , I have had one or two side effects but nothing too bothersome, the pain in my heal has gone, the rash isn’t a problem and dry feet are sorted now, the only real problem is sore feet, since starting treatment I have used the udderly smooth cream which is a help for any dryness now I am trying Vaseline on my feet too.
keep in touch and let me know how you go on ️
Hi again, how are you feeling now ?
I have started massaging Vaseline and it seems to be working on the dry skin but have red patches of really sore bits so hope it helps on them too.
Hi thank you for messaging, I’m currently on a break from my treatment as my liver function is too high, blood tests on Wednesday to see if it’s come down, cross fingers I can get back on track soon x
Hi last 2 treatments been ok always feel tired next day feet have been not to bad itching now and then but not to bad let's hope its all worth it hey had my treatment thursday and scan dont get results till 24th which is a bit of a wait.all keep well and good luck.with with everything x
Oh that’s a worry you can do without. I hope bloods settle for you and you can get back on track again …everything’s crossed for you
Oh it’s scanxiety time for you ! I wish we didn’t have to wait so long for results. I too am wiped out the next day but console myself that these side effects show that’s its doing something. Good ck for the 24th and you keep well too . As with Beachlife everything is crossed for you
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