Post nephrectomy update

Hi Del proud of you but remember small steps did you feel wiped out after the walk ? Like I said in a post I craved Ready salted crisps my Macmillan nurse said too much salt will kill you also it may effect your body recovery as too much salt is really bad for you   

Yes I had a similar experience they did say it may take some time to gradually return, I also had more liquid/ solid diet ( lots of ice-cream & smoothies) 

Hope you get your taste back soon.

Mike

Thanks Mike,

     after feeling my recovery was a bit slow I seem to be a lot more comfortable and mobile suddenly. And yes I take your point re small steps. I am holding myself back. It's quite a luxury being able to recover slowly thanks to the attention/care/patience of my wife. 

Up until now i have felt 'wiped out' after even small walks. And been left feeling uncomfortable inside. Since Tuesday i seem to have leapt forward a bit where i don't feel so tired after. I can also sleep through the night without having to get up and take some paras in the early hours. 

Really i'm coming on as well as can be expected. Just wish i could get my usual taste back.

Thanks Mikey. Appreciate the encouragement in your reply.....Del.

Totally different cause (my kidney function is in the amber zone right now) but can I join in your food woes?!   For weeks now I've been off  food completely.  I can't stand anything dry.  I've not enjoyed a coffee for 6 weeks, can't stand buscuits.  Chocolate really hurts my teeth (I mean -what?!).  I can't even face any cake.  I love cheese but not now.  Oh and I've had to go and buy loose tea because my tea bags are too strong!  Starting to get a bit better now, but I'm fast getting fed up with it    Grrrrrr  Claire xx

Hi Claire, you may indeed join in my food woes. It's not a very nice club to be in though.Sorry to hear you're off food completely. And i can certainly relate to being 'fed up with it''. It has had me quite down at times. sounds daft i know when i think of the s**t i've got going on that i should be down about losing my taste. I did find this on internet:- "Alterations in taste and smell, including but not limited to anosmia, ageusia, hypogeusia, and dysgeusia, have been described in association with various medications, including anesthetic agents. Frequently, these symptoms occur 1-2 weeks after medication administration and last several months."

Yes on the 'too strong' too. I cannot take any strong flavours. Even tomato sauce is way too strong for me. For now i'm having quite bland meals that i can at least manage to eat. For example tonight i had mash, vegan burger, and peas. with vegetable gravy. It was ok.

Glad yours seems to be getting a bit better. It is shocking how destabilising/confusing i've found this so i really do sympathise. Let us know here if it changes.

Cheers....Del.

Hi Mmun and Deloo,

Sorry for butting on your conversation but I too had lost my tastebuds for two years, I was forgetting what different things were like living on my memories, I have been on a new combo of chemo tablets and my taste come back a couple of weeks ago thank god, reading your comments I know what you are going thru it is very hard to explain to others what it actually does to you when you lose taste and things your loved just are so bad and bitten you just don’t want them anymore, I know I said at the time if this is the worst thing I can cope but it was very trying my heart goes out to both of you Sandy xx

Thanks Sandy,

Great that you got your taste back. And i have some news on that front....my taste is back...woop woop. Just three weeks of everything tasting completely wrong was getting me down on the food front (pathetic i know).

I had some chips at Bexhill-on-sea yesterday. Dreaded eating them and was only going to try a few. But hey...they tasted like chips should taste. The salt and vinegar was bearable too. Since then my taste is back to normal. what a result. 

Cheers....Del.

Hi Deloo,

I actually replied to you and Mmun yes I was the same I lost my taste buds for two years I suffered, you cannot explain to other people until you go through it, at first I said if that is the worst I could live with it but it did change my life completely I know it sounds weird but all I can say is that a couple of weeks ago my taste came back and I have been out with family and friends for meals and dinner at my daughters and I can only say it is so good to be able to go out and enjoy food once again, I hope and pray that you get yours back soon and you will be able to celebrate too Sandy x Hi Del,

just seen your reply I am so happy for you no body knows what you are going through until they experience it great job you can go for a meal and beer or wine and enjoy.

Hey you lot stop talking about a sense of taste, l haven't had one for 57 yrs, since l was 22 yrs old! ( That is apart from when l married my wonderful wife of 55 yrs ) l hoping a bit of immunotherapy will bring it back Love to you all, Adrian

Hi Adrian,

Sorry about that but with my taste back I cannot help but shout about it, how are you doing have you started your treatment your new treatment yet, so good to hear from you, I have been on mine for about six weeks now, so far so good only side affects are very dry mouth and patches of dry skin, I have my husband putting cream on me twice a day , I am so sorry to hear about your tastebuds was it an accident that caused it, hopefully immunotherapy will restore your taste I think it is the new treatment that has brought mine back sending you hugs and best wishes Sandy xx

Oh that's OK Sandy, it was a very much tongue in cheek response. Not started any treatment yet just waiting for scan result this Wednesday and then l'll know which direction l shall be taking. Good to hear "things" are getting better for you. As always, it's so good to get a response, thank you Sandy.and best wishes