Urothelial Cancer

Hi Porta,

1. Welcome to the community you have come to the right place to get help and support from the group, it is a club that no one wants to be a member of but it is a great place to be when you find you have cancer, my cancer was found when I had a routine ultrasound for my UTI’s we know what you are going through as we have all been there can’t eat, sleep and worry yourself sick try to stay calm and ask any questions you like there is usually someone that can help you and will be able to answer any questions you have good luck for the 7th of June best wishes Sandy 

Sandra thank you so much for reaching out to me. Am at work right now to keep my mind off my problem, but every chance I get am on this platform reading what others like myself is going through. Believe me when I read how big some of these tumors are it is so scary.  Am from a small Island in the Caribbean and don't know half of the treatment names that is mention here, but am taking note and will ask about them when the time arise.

Thanks again for makin me feel welcome

Hi Porte, welcome to "The Club". Sandy's words are important, it's difficult but with as much information as you want you will get thro' this. Me???? well l continue to look at everything through "rose tinted glases". Take care and love from Adrian

Thank you so much for your welcome.

I was wondering who never smoke one day in their entire life and still ended up with this cancer? My Urologist told me this kind of tumor you find mostly in smokers.

Hi Porte.

• welcome to our group and hopefully you will feel better knowing there are lots of us in the same boat. We try and stay positive and support each other. I know exactly how you feel about not smoking and still getting cancer. I first had a nephrectomy 17 years ago when I was 49. I don’t drink alcohol or smoke and was a healthy weight and regular gym goer, I also played table tennis regularly. There is no sense to it. After my op I recovered really well and have had 17 good quality years but it’s unfortunately returned. Have had surgery and radiotherapy. Was due to start infusions tomorrow but have an infection so being treated in hospital for that then try again. I really hope being on here helps you and wishing you all the best cx

Hi Gooner,

Sorry you could not start your treatment, do they have any idea when you will be able, I was two months before I started mine in April, I hope you are feeling better soon, I am sending hugs and best wishes.

Sandy xx

Hi Goomer 

Thank for making me feel welcome and  hoping you feel better soon. am getting more nervous as my surgery date draw near. Am praying that there is no spreading. Am trying to understand  why these tumors cant be detected at a early stage.

Hi Sandy. Thanks for replying. Am still in hospital with breathing problems., had a scan this morning and found isomer small clots on my lungs., They have bee

been very pro active and I am already on the right treatment to disperse them.Once

settled down hopefully infusion will start. Waa