Just learnt my cancer is incurable.

In Nov 2021 the same happened to me ccRCC spread to the lungs.  I've been on immunotherapy for a year and my lungs are now free from cancer.  The treatments for immunotherapy are numerous and developing all the time.  I know it feels numb at the moment but I've progressed to the point I carry on as normal now.  I feel normal and I've stopped thinking about it all the time.  Made easier by the fact my treatment is going well.  I'm in the incurables group too so I'll see you there!  

PS Posting in the incurables group - Membership of this group is on approval from the moderators.  I suspect you're not seeing a post button because it's awaiting review.  Not to worry - it's setup like that to segregate friends & family from people with a confirmed diagnosis.   F&F have their own incurable group. 

Thank you. That gives me hope. I saw the urologist today, so he wasn't able to explain about immunotherapy, only that it exists. I am pleased your treatment is helping you.

1. In July last year my wife Lorraine was told that she had stage four kidney cancer. She thought she'd trapped a nerve in her arm. Turns out that she'd got a large secondary tumour in her arm. Scans showed tumours in her kidney, lung,  arm and spine. We were terrified. Moving on, Lorraine has had three immunotherapy sessions and the tumours have shrunk.  She's had some side effects and been hospitalised as a result but the care she has and is receiving is just outstanding. She feels well overall. We know that her condition is not curable but with faith in her treatment and a feeling of posiitivity we continue to enjoy our time together and our life. I wish you all the very best. Put your faith in the medical profession and concentrate on your mind. Be positive and enjoy life each day. Every day is special. 

Dear Lucy Locket,

 I know you mind must be in turmoil at the moment, please don’t look at Google you will only frighten yourself, my story is very similar to yours, but I have been on immunotherapy for the last three years, after I was told I had only months, the others are right the medications are coming on leaps and bounds, I have been on three types of immunotherapy now and I have complete faith in my oncologist, try to stay positive there is light at the end of the tunnel, also live your life to the fullest go out socially and enjoy time with family and friends, I know you will have bad days but try to make them less than the good ones, sending you hugs and best wishes I will be thinking about you take care Sandy xx

Hi Lucy. My story is similar to yours. This is my first reply to anyone here! I'm 63, and was diagnosed with stage 4 last June. It was totally unexpected, as I had, and continue not to have any symptoms. My cancer has spread everywhere....but 4 sessions of a combo of ipilimumab and novilumab showed excellent results when i was scanned, and I am now on a maintenance dose of the novilumab once a month. At first, it took over my life, and was in my thoughts all the time. Now it has become 'routine', and I am able to carry on with living life. Although everyone is different, and no two people will experience this the same, there can be good outcomes from immunotherapy! I have been very fortunate not to get any serious side effects....not everyone does. Keep your chin up! Hope you do well.

Thank you. Welcome to the community. I am being offered the same combination of immunotherapy as you.

Yes, this combo seems to be the 'go to' immunotherapy of choice for metastatic renal cancer. My oncologist is really excited by the results it is getting, so I hope it works for you too!  Some patients are surviving at least 5 years after first diagnosis.