Went for my 5th pembro on Monday 13th of October. Whilst there I was handed a prescription for Sandoz phosphate as my phosphates were low. It was for 2 tablets twice a day for 5 days so not for long. I asked whether I should have another blood test after...
I've been taking Cabozantanib for several months and have always suffered with bad diarrhoea. My dose was lowered, then I tried Imodium and it was still a problem, although a lower dose did help. The last week though it just got too much and I had to...
I am now on day 10 post open nephrectomy on my right side. I have noticed a difference in healing since I've got home and now I'm only taking paracetamol because the oramorph they sent me home with was causing really bad constipation and making the pain...
Hi Folks This trial is currently underway and will be opening again for more candidates in some locations in due course. I've been provided the info as I tick the boxes. The purpose of the study is to find out if new treatment Modi-1 can be used safely...
Hi, I’m new to the community. I had a PE in July and when they did a follow up CT they found a 32x21x38mm necrotic mass on my right kidney and a 9mm dense lesion on my liver. i had my first appointment with a urologist 12th September who said I had...
So I was on pembrolizamob for 7 of 10 treatments but a CT scan in June showed effusions on both lungs and my heart. I was on holiday in Turkey when I had an issue below my ribs, I thought it may just be gallstones or something. The second week I found...
Hi I did write earlier to see if anyone else get this very bloated or swollen in abdomen and around the 12 inch scar. It’s very uncomfortable and my tummy seems hard when I walk or stand up, This is after 4.5 months since the major operation.
Hi All, Just been diagnosed this week with cancer on my left kidney 4.5cm in size. Awaiting results of chest and abdominal scan to ensure that there is no other cancer and then being referred to a partial removal, luckily it sits nicely on the bottom...
Hello peeps! I'm 73 and have treatable but not curable, stage 4, kidney cancer that has metastasised in my lungs. Over the last two years I have been on Tivozanib that was stopped after around 9 months as it ceased controlling my cancer. I then went...
My diagnosis, treatment and getting to this point feels like a lifetime but in fact I was only diagnosed last October, my full story is in my bio. I've just started on immunotherapy atezolizumab and really struggling, in need of some advice on coping...
