Kidney cancer and Immunotherapy

I wonder whether my experience might be of some help or support. I am just turned 75 and was diagnosed with renal cell carcinoma in October 2024 with METS to lungs and brain. Like you, treatable but incurable. I had a craniotomy followed by six sessions of stereotactic radiosurgery before starting on immunotherapy in January 2025. Nivolumab every four weeks and 1 cabozantinib tablet every day. My last two scans have been very positive, Brain remains stable and there have been measurable reductions in tumor size in both lung and kidney. I hope my next scans at the end of October will continue this downward trend. There are side effects, for me mainly diarrhoea, dry skin and itching and some issues with sore fingers. Other side effects from the long list have bothered me very little. So, my experience with this immunotherapy has been a good one on the whole and I hope they will decide to continue it in 2026. I hope this is of some use. Take care and try not to worry - easily said, I know. 

I have cancer on my remaining kidney with mets on my lungs and Adrenal glands and am incurable.

  I had Nivolumab and Cabozantinib together but on the second infusion I had  anaphylaxis shock so I was treated for that and it stopped. The Cabozantinib was stopped after 2 weeks as my blood pressure went really high and I had debilitating headaches.

I am now about To start pazopanib  once I'm over my tooth extraction, its all thats left to me apparently.  The list of side effects are the same as the Cabozantinib plus some extras so I'm not too keen as I feel so well off the treatment and am thinking quality over quantity may be the way forward.

I wish you all the best and hope it helps you.