New diagnosis, waiting sestamibi scan - still in the dark

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Hi, 

I’m new to the community. I had a PE in July and when they did a follow up CT they found a 32x21x38mm necrotic mass on my right kidney and a 9mm dense lesion on my liver.

i had my first appointment with a urologist 12th September who said I had a small renal cancer that could be ‘shaved off’ robotically but I had to wait and come of the blood thinners from the PE first. He referred me for a MRI with contrast on my liver and a sestamibi scan on my kidneys, I’ve had both of these this week. Do you think he would have said I had cancer if he thought the sestamibi would should the tumour was benign? I’m trying to get a feel for my whether I have RCC or not and have to wait at least another 3 weeks for the sestamibi results and I’d prefer to have a better idea of what I’m dealing with. Any experience and advice would be appreciated. Many thanks.

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Turns out my sestamibi scan was ‘dark’ confirming the likelihood of cancer so I’m now on the waiting list for a partial nephrectomy, based on current waiting lists it will be in the new year.