Hi, first post here, but I thought I would share my experience so far, along with a timeline of everything and what to expect, which seems to be a common question, and it might be helpful. I'm 47, Male, and in November 2024, I had a single episode...
Hi, I’ve been taking cabo for 6 months. Firsts 3 months was 60mg daily which reduced my tumours by 50% but had to reduce to 20mg for the last 3 months as my liver couldn’t cope and would have been damaged. My latest scan show no reduction but no growth...
Hi all just after a bit of advice please, had my right kidney and adrenal gland removed 3 months ago and have now just started immunotherapy as my cancer was high risk, it has been a bit of a roller coaster ride to say the least, However I have been off...
Between the treatments how do you manage the pain? It seems, I need some pain-management sooner than later. Any advise, please? Marigold
I’m Kate, I am 44 I have after extremely abnormal blood tests and constant Pylonephritis since Christmas was referred for a scan and they found a 75mm mass on my kidney with a vascular appearance. My gp’s refused to send me for a scan and actually refused...
Hi everyone. Just to introduce myself and my situation. I have just turned 55 this March. I collapsed/had a possible seizure late on Xmas eve and I was taken to A&E where an emergency CT scan on Xmas Day revealed I had a 40mm lesion in the left side of...
Had left kidney removed on the 6th of May. The good news is that the bladder, lymph nodules and other small organs look clean. The bad news is that the cancer broke through the kidney casing. I thought it was going to be removal or chemo - not both. Now...
How did you survive the diagnosis?
Hello All Three months ago had CT with contrast in a and e because of another issue not kidney related. The results were normal ct. Normal kidneys etc. Over the past couple years I've been getting intermitent niggling pain in my left kidney area. An...
Has anybody had this experience? My partner had his right kidney removed in 2013 after being diagnosed with clear cell renal carcinoma. Over the next ten years, he had each of his adrenal glands removed at different times, 20% of his pancreas and...
