Recovery time

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Hi all just after  a bit of advice please, had my right kidney and adrenal gland removed 3 months ago and have now just started immunotherapy as my cancer was high risk, it has been a bit of a roller coaster ride to say the least, However I have been off work now since the operation and still don’t feel up-to going back yet as very fatigued, with internal pain still and general feeling under the weather, is this just me as my recovery time seems to be going on a while  or has anyone else experienced this amount of time to recover.

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hi Anne, thank you for your guidance much appreciated.

  • I think you have to remember that you have had a serious operation, with all the physical and emotional shock that goes with it and with the diagnosis of cancer. I guess the subsequent tiredness is going to depend on one’s age and general fitness. As an overweight old lady my experience may not be relevant to you! I think you listen to your body, talk to your consultant about it at the next appointment, and do what you feel able to do. Best wishes. 

  • Hiya Mike, welcome

    I am 18 month's on and only just feeling 'normalish' I still get fatigue and have reset how I live my life.

    I can only do small walks but I know I am getting stronger now. I am not infirm, but I do my housework in stages now and don't rush myself into overdoing it. Sounds a bit slow, but tbh it's made me enjoy the tasks more than when I rushed them.

    We are all different though. Some are back to normal, back to the gym, back to work. However only u know what levels u can work at. If u don't feel ready for work then don't, if u feel u could only do one day at work amd build it up over time then talk it through with work. 

    Most of all don't feel guilty, don't feel useless because your stamina isn't where u feel it should be, just take ur time, u are healing, your alive...don't beat yourself up...

    Hugs sweety 

  • Hi Fleabane

    Many thanks for answering my question, and pleased that you are also on the road to recovery.

    best wishes 

    Mike

  • Hi Mike 

    Had right kidney removed Nov 2021, stage 3. 59 years old at the time. I still struggle with fatigue some days walking round Tesco can drain me ,other days maybe a walk around local lake about a mile and a half which is enough. Have a physical job, chemical plant and not been back, probably won't I'm 63 now. Its frustrating to hear how others are back to full fitness in a short time. Take your time if you can stay at home do it. Only you know if you are ready. Still get terrible back ache even when doing the dishes or pottering in garden.

  • Hiya Gdad

    Nice to meet you.

    The fatigue is a rascal. Can take confidence away. I too was envious of those who got their fitness back. The gym, running..hahaha

    I had to retire from my job, which I absolutely loved (working with people with severe dementia)..

    Like you about a Mile and half is my lot too.

    Even worse is my 70 year old hubby is a climber, snow climber and hiker, fit as a fiddle. But he gently encourages me to do small walks with my border collie puppy Phoebe...think the secret is little and often.

    The blessing for me is that being forced to slow down I now notice all the best things in life...the sun on my face, the wind in my hair, the colours of the trees, nature all around. Tbh I never felt more alive, just a lack of stamina..hahaha

    Cancer takes us all differently and being human we adjust according to our circumstances.

    I wish u well, enjoy those lovely walks,  then put ur feet up with good cuppa

    Smiley