Hi ,
I was wondering if you could help please , with any advise ect ?
On new years eve I was told that the lesion on my Kidney was a tumor and that they wanted to operate to remove within the next 4 weeks. I also found out 3 hours later that the biopsy they did on my thyroid had come back as cancerous ! Not the best start to 2021 I had hoped for !!
Anyway........
Yesterday i had a call from another urologist different to the one who diagnosed , to say he wanted to do another CT without contrast to check it wasnt a blood clot ?!?! A blood clot after another telling me he believed it was Cancer and I would need to be operated on in the next 4 weeks .
Last night I hardly slept worrying , what if I'd told work , my family and friends so that I could have support with my 2 small children and it wasnt cancer. It would be amazing news but why wasnt this other CT done before hand?
Today i spoke to the specialist nurse who said the other urologists concern is I have symptoms ( bleeding when I wee, really bad pain in my back ) going from chronic constipation ( over 5 years) to an upset stomach and constant temperature and sweating . With high calcium , which arent consistent with a 4cm kidney lesion. So he doesnt believe it's a tumor as I dont fall in to the tumor 'box'.
There is a specialist multi disciplinary team meeting next Friday at another hospital as mine dont deal with Kidney cancer in my area, which I will be discussed at.
I just wondered if anybody else had been told one thing and then another or if anybody was an incidental finding ( they believe I had kidney stones- but there arent any. So when they scanned to find them they found the lesion ) had symptoms like mine or if anybody has any advise to what I can do say ask ?!
Thank you, my mind is all over the place .
X
The tumor is now a Bosniak grade 4 cyst.
The consultant will refer me today , I should get to see the consultant at the other hospital in 2 weeks and then it's all dependent on how they are functioning due to covid for when I will be operated on .
Thwy want endocronology to start my treatment to lower my calcium asap so now trying to get hold of my ent surgeon who is looking after my throid%parathyroid nodule as he was meant to refer me a few weeks ago !
Feeling very overwhelmed by it all today , I think seeing it on the CT images made it seem more real and far bigger than i expected it to be .
The consultant said I will spend a lot of 2021 in and out of hospital but I told him nobody else can go anywhere so I might as well get better in 2021 
