Libo

Once I was diagnosed it all happened within 6 weeks. Mine was 12cm and had a radical surgery to remove all the kidney open surgery. I am now waiting to see oncologist to discuss further treatment as mine was stage 3 (pT3a) and I have a very small lesion on upper R lung. Hope this helps. 

I went to my doc for over 3 months with pain below, I had enough one ay and went to A&E they tried to put it down to a STD which I strognly told them there was more chance of me being GOD than that, I demanded something be done. The Doc referred me to get a ultrasound below, when they did this they checked my sides at same time and this is when they found the tumour. From that day to getting diagnosed was about a month. My op was done about 2 months later but that was due to me having a holiday booked, 

Hi, mine was smaller 5cm. They found it on a scan when I developed blood clots in July 25, met an oncologist beginning of September and had partial nephrectomy 2nd Jan this year - my surgery was a bit delayed initially as I was on blood thinners but even then all done including treatment within 6 months. 
Good luck! 

Hi, my diagnosis was a complete shock, went to A&E  September 10th 2025  with shortness of breath, weak, pain in lower left hand side in my back,  and  flu symptoms , after 13 hours of waiting and getting worse I was  finally admitted, following afternoon(  16.30)had a contrast CT, following morning 10:30 was told i had a large mass, which ended up being 9.5cm and growing for years is what my consultant said, my radical nephrectomy was on 21st January this year, I was definitely left longer than others from what I've read, best of luck.

Good afternoon, LDachs. 

Sounds like you have caught the cancer in time and it being slow growing is a postive sign. Never nice though when you hear the words cancer. I still remember sitting in A and E with the doctor and shaking when he said the word cancer. Even though I roughly guessed and knew before attending the hospital. Still nothing prepares for those words to be said out loud. 

I think the length of time for any treatment or surgery depends greatly on what the ct scans shows and other factors as well. My consultant said by looking at the ct scan they could tell it was malignant and looks advanced.  Hence why the timescale for me was quickier in my case. 

I do hope you are recovering well. My detaisl are in my profile. Here to help and support if needed. My op was done 8th Dec and my asvice is to not rush anyting and take the time to heal. Internally things take up to 3 or so months to heal, so even if the outside looks well. 

Bw 

Jamie 

Thanks Jamie, appreciate the reply, I litterally thought the kidney comes out and chemotherapy begins, then I found out thats not possible with Kidney cancer, and its a different kind of therapy thats offered, I'm finding it's helpful reading everyone's story and what they're going through.

What is the treatment they have offered. I start pembro on 27th has I had clear cell grade 4. I know they have to start this within 3 months of surgery as per nhs guidelines from the consultant. 

It is all a mind field out there. Information gets confusing at times. The main part is recovering, take your time and be well enough for more treatment if needed. It does take a while following surgery. 

Always happy to chat and support. Its the best part of this forum is to share experiences and give insight to everyone is different, but we share some similarities too. 

Well, I had a call from my cancer nurse, regarding some numbness i have, told me some of my pathology result, high risk tumour, grade 3, stage 2, she mentioned immunotherapy, but did say, "you may not even want it after you read what side effects it can have"  and reading them I'm like ' oh god!' but I will still go through with it, she mentioned that I would need a CT scan and bloods before my appointment 10th March, my op was 21st of January. 

The side affects are scary and the idea of them is daunting. They do closely mo monitor and they have a urgent number to ring 24 hours a day , which you can call for any worries or concerns with physical issues which you are worried about. 

I had to have a repeat CT and bloods taken before treatment and having more bloods this week before my 1st dose of treatment. So sounds like we shall be starting this next journey with only a couple of weeks between us. Always here if you need a chat or support. 

Hi Jamie 

sounds like we both have the same problem but I’m a couple of weeks behind you with everything . I had radical nephrectomy on right kidney  December 18 th . I also have a tiny nodule on my right lung which will be monitored. 
Had my first meeting with my oncologist today and I’ve been offered immunotherapy they want to start march 18 th I need to decide if im going to have the treatment or not . 
I’m unsure if the risk of the side effects is worth it for me I have a lot to think about . I will be following your journey hope everything goes well for you x