Advice, please?

Don't cancel the appointment. If you did you would then add another level of worry as you panic about the consequences might be! Have you been assigned a nurse? They can be very helpful but, if not, try asking an expert on here.

I think many of us on this forum will absolutely understand your anxiety, the anguish of waiting and mood swings between hope and despair. My way of taking control was being as informed and organised as I could be; perhaps other people will come up with better ideas but I couldn’t ignore your post. 

Thank you ️ I know what you’re saying and I know I need to keep the appointment but everything feels so out of control. I spoke to the CNS today, she couldn’t offer any advice at all apart from contact the consultants secretary to see if the appointment can be brought forward but I tried and it just rang and rang with no option to leave a message.

I just feel so lost in the system that doesn’t seem to be working the way we expect it to.

The crazy thing is I don’t think I’m that concerned about the results it’s the lack of a plan that is really making me anxious. If it was bad news and they said we won’t be doing anything for 18 months I’d respect that and their decision as they’re the experts but what I can’t cope with is the not knowing

We have all been in the place you are today.  

28th April - actually I think that's a bit ridiculous.  I was told it was cancer first, and got the biopsy and an appt with oncology booked in straight away.  Of course, they both came in on the same day, so I pushed the onco out to the next week.  

I learned that consultants and NHS departments arrange their calendar on a set cycle.  They will only have appointments on half a day each week.  Mine is Tuesday afternoon.  So if you miss one Tuesday, there's no tomorrow, it rolls into the next Tues afternoon.    You've probably got an appt in 4 weeks time because that's the end of the queue.  

You could phone up and ask if there were any cancellations, or tell them you're struggling with the wait, or ask for a phone call or a summary, or ask to see the registrar/junior doctor?   

Why don't you phone the helpline here?  They are very good and I'm sure they'll have lots of advice.  It gives you someone to talk to, as well.  Solves that "no one to talk to" issue you mention.  Call the Macmillan Support Line for free 0808 808 00 00

I managed my waiting by taking each day as it comes and tried to distract myself.  I broke iti into smaller chunks of a week.   I set a target of the weekend and that meant I could tick-off a week.  Every day was a step closer to the next milestone.  Sometimes I noticed I hadn't thought about it for 2 hours and I took that as a positive.  I know it's easier said than done.  

27mm is very small, as you say.  Sometimes they don't operate until 4cm.  Another option could be 3 or 6 month scans and a partial nephrectomy once it was 4cm.  

I was 52 when I was diagnosed and that was 4 years ago now.  Incidental finding too.  My kids were 17 and 19 and I felt for them mostly.  Cancer does take control, you're right, but over time, the control will swing back to you.  Many on here can testify to that.