Hi
I had a tumour removed and a partial nephrectomy of my left kidney on the 19th November 2020 (robotic surgery). My tumour was found by accident, as I believe many are found, when I had a scan for pelvic and groin pain.
On the 15th December, my 57th birthday, I had a telephone consultation with my consultant. I was initially thrilled when he said I didn’t need any follow up treatment. The tumour was small and he is confident he got it all with good markers.
However, as I contemplate the whole conversation, he did say that it was cancer and not benign as I had hoped. I will be monitored and have a scan in 6 months. He said that it was a T1 stage 3 tumour. I have spoken to the CNS team to try and clarify what this means in real terms and they were helpful. I think T1 is good but stage 3 not so good?
i am a positive person and I hope to return to work in January, have a scan in June followed by annual scans and live to a ripe old age enjoying my husband of 38 years, my 3 children and their partners and my 9 grandchildren.
I would love to hear from some of you who have been where I am now and are many years in the future from your diagnosis? This would fuel my positivity no end.
Thanks
Sutt
Hi and a welcome to the Kidney cancer group from me, the Community champ for this group.
I had a full nephrectomy in 2005 n am still around to tell the tale.
I've been on Pazopanib for several years with a 3.5 year gap from 2016 to 2019. I've also had various metastatic episodes,which is when I started on the Pazopanib. I tend to have scans every 3 to 4 months.
More info on my profile if you're interested.
The main thing is I'm still here n intend to b for a good while yet. When I had my op I was the breadwinner n had a young son of 10. He's now a strapping six footer of 25.
I've been married for 40 years
Take heart !
Love n hugs
Sue x
Thanks Buttercup. It is heartening to heat from someone who has survived with such longevity. You have helped me to have hope. I am staying positive! X
Yes, anything that helps you stay positive is good news.
Hi Sutt
I would have a scan at least every 8 weeks , even if you have to pay, it’s important to address any spread sooner rather than later. I have had tumors in lung, brain, adrenal gland, pelvic bone, and rib bone after my kidney removal.
good luck
I tend to agree with@ fatbouypne2
.See my profile re my mets.
Sue
Hi sutt
I am in the progress of going to have a partial nephrectomy on my left kidney so not as far as you are at this stage, they did tell me that I was going to have a full kidney removal at 1 stage till they had a meeting with urologist at another hospital where they decided it is best to do a partial nephrectomy which they found a lesion on the same kidney and they will deal with that too, im glad to be reading up on someone who has had the same thing as I am going to be having hopefully in January 2021,
Hello koi, I’ve just been told I have kidney cancer and will need partial nephrectomy. Waiting to hear. Told it will be robot assured surgery. Is a laparoscopic a better way? What are you having do?
worried.
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