Partial Nephrectomy

FormerMember over 4 years ago

9 replies
49 subscribers
1965 views

I had a tumour removed and a partial nephrectomy of my left kidney on the 19th November 2020 (robotic surgery). My tumour was found by accident, as I believe many are found, when I had a scan for pelvic and groin pain.

On the 15th December, my 57th birthday, I had a telephone consultation with my consultant. I was initially thrilled when he said I didn’t need any follow up treatment. The tumour was small and he is confident he got it all with good markers.

However, as I contemplate the whole conversation, he did say that it was cancer and not benign as I had hoped. I will be monitored and have a scan in 6 months. He said that it was a T1 stage 3 tumour. I have spoken to the CNS team to try and clarify what this means in real terms and they were helpful. I think T1 is good but stage 3 not so good?

i am a positive person and I hope to return to work in January, have a scan in June followed by annual scans and live to a ripe old age enjoying my husband of 38 years, my 3 children and their partners and my 9 grandchildren.

I would love to hear from some of you who have been where I am now and are many years in the future from your diagnosis? This would fuel my positivity no end.

Thanks

Sutt

buttercup01 over 4 years ago

Hi and a welcome to the Kidney cancer group from me, the Community champ for this group.

I had a full nephrectomy in 2005 n am still around to tell the tale.

I've been on Pazopanib for several years with a 3.5 year gap from 2016 to 2019. I've also had various metastatic episodes,which is when I started on the Pazopanib. I tend to have scans every 3 to 4 months.

More info on my profile if you're interested.

The main thing is I'm still here n intend to b for a good while yet. When I had my op I was the breadwinner n had a young son of 10. He's now a strapping six footer of 25.

I've been married for 40 years

Take heart !

Love n hugs

Sue x

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.

FormerMember over 4 years ago in reply to buttercup01

Thanks Buttercup. It is heartening to heat from someone who has survived with such longevity. You have helped me to have hope. I am staying positive! X

FormerMember over 4 years ago in reply to FormerMember

‘Hear’

buttercup01 over 4 years ago in reply to FormerMember

Yes, anything that helps you stay positive is good news.

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.

fatbouypne2 over 4 years ago

Hi Sutt

I would have a scan at least every 8 weeks , even if you have to pay, it’s important to address any spread sooner rather than later. I have had tumors in lung, brain, adrenal gland, pelvic bone, and rib bone after my kidney removal.

good luck

buttercup01 over 4 years ago in reply to fatbouypne2

I tend to agree with@ fatbouypne2

.See my profile re my mets.

Sue

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.

FormerMember over 4 years ago

Hi sutt

I am in the progress of going to have a partial nephrectomy on my left kidney so not as far as you are at this stage, they did tell me that I was going to have a full kidney removal at 1 stage till they had a meeting with urologist at another hospital where they decided it is best to do a partial nephrectomy which they found a lesion on the same kidney and they will deal with that too, im glad to be reading up on someone who has had the same thing as I am going to be having hopefully in January 2021,

FormerMember over 4 years ago in reply to FormerMember

Good luck! I’m sure you will be fine x

Onlymee over 4 years ago in reply to FormerMember

Hello koi, I’ve just been told I have kidney cancer and will need partial nephrectomy. Waiting to hear. Told it will be robot assured surgery. Is a laparoscopic a better way? What are you having do? worried.

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Partial Nephrectomy