Immunotherapy, Diarrhoea & Eating

HiReign have you got any Loperamide for the diarrhoea? Either your oncologist or GP can prescribe it.

You might also ask someone to prescribe Cavilon for the soreness caused by the diarrhoea

Hi Yes I have thank you, things do improve once it kicks in. But I’m still uncomfortable. 

I want to be eat healthy but healthy stuff seems to make things worse. Any tips would be welcome. 

Hi Reign, as a fellow vegetarian I know how you feel re eating healthily.Like you, I end up on white bread, rice etc. Have u tried rice pudding? A comfort food if ever there was one!

Hi Reign,

I'm not veggie but have had some similar issues in the past.

I found that certain foods tended to affect me more than others.  Broccoli can be an issue for me but I'm ok with other green veg.  I know other green veg has been problematic for others.  Raw onion can be a trigger for me including in things like coleslaw.  Unfortunately beer is something else which has a sudden and dramatic effect upon me.  All I can suggest is trying to introduce foods one at a time until you find one which has a bad impact and then avoid that one but you have probably already tried that.

As far as the soreness goes I use baby wipes rather than toilet tissue and I also put moisturiser on my anus to sooth it.

I struggle to get the balance with loperamide although I do use it if I need to.  However if I take enough to stop the diarrhoea then I tend to be bunged up for several days.  I know others who have managed to get a balance between loperamide and fybogel but it eludes me.

I hope that you can find a resolution to this.

All the best,

Gragon x

Lanacane cream available from any chemist and many other retail outlets is excellent for sore and irritable areas of the body, find a link to familiarise yourself with it here:-  www.chemist-4-u.com/lanacane-medicated-skin-cream-tube-30g

Hi Thank you for your reply it is appreciated. It’s such a tight rope with the drugs trying to get it right. And the food, I really want to eat healthy but it seems to be very difficult. I hope you are ok.

Hi Thank you for your reply. I have tried Lanacane but it doesn’t seem to touch the soreness, also anusol, sudocream & a cream for babies with nappy rash. But nothing seems to help. It’s such a shame because I can cope with the other side effects generally but this one is making life very uncomfortable. 

I’ve also been suffering from this while on chemo, and also immunotherapy . Also have hemorroidss. Oh joy.  I’ve bought a sitz bath that fits over my toilet with the seat up and makes it easy to wash the area.  Also got wipes called Preparation H. ( ideally don’t flush ) but it says you can.  Both from well known delivery firm.  

Just recently I had a two egg cheeses omelette that gummed me up for a couple of days but that was a relief. 

Also anusol of course.  

Hi Thank you I really appreciate your advice. It’s so hard trying to find any advice & guidance. I swing from either diarrhoea or constipation & cannot seem to get a happy medium. I lovely healthy food but it doesn’t love me at the moment & that is getting me down. 

I will look into the bath & the wipes. 

Hi Reign
Sorry I'm so late to this - something I got very familiar with also. The swing between the two took me a long while to figure, but I found rather than the recommended 2 loperimide immediately, if I took one at the first sign of a loose movement and then another one with the next movement and so on I got a better level of control without ending up blocked. I'm not saying that would work for you - but if you haven't already experiment away from the recommendation.

And I use moist toilet tissue. I just buy own brand, Aldi, Lidl, wherever I walk into. If my bowel is on the warpath there's not a dry sheet of toilet paper within 10 yards of my bum. I was honestly stunned at the difference it made.

Diet advice I'm no good at. I haven't tried to narrow down food. I just know that alcohol and white wine in particular don't love me.

Hope you're doing ok
Jo

xx