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Hi I'm Deborah was diagnosed with hl in Jan I have had every scan biopsy ultrasound u can imagine only to be told u have a very rare and strange case of hl so they need more info before they decide on which treatment to give Mine started as a sore throat...
Hi everyone, I had the results back from my interim PET scan yesterday and my consultant told me that I’m not where they would expect me to be at this stage. I’m devastated to be honest. I’d like expected a really good scan as my symptoms had reduced...
Not really sure how to start this so I'll try to get straight to the point. About a month or two ago, my partner was diagnosed with HL. They were only staged last week and by that point, we found out it was stage 4. I read online that even at stage 4...
I was diagnosed with Hodgkin lymphoma in 2019 and fortunately the treatment was successful, my question is, does anyone else suffer adverse effects from the covid boosters, each one I have floors me for days and makes we question if I should continue...
Hi there, I've always had a little bit of a problem with my veins as they're quite small. However, I've got into a good routine each time by using a heated beanbag on my hands in advance to bring the veins up, and now the cannula insertion hasn't proved...
Hello. My name is Justin, I am 32 years old. About a year ago, I had some pretty alarming symptoms. Night sweats, not drenching the sheets, but enough to make me take the blanket off. Persistent fatigue. I felt I needed to nap, and naps felt like...
Hi I’m new here. Iv had a lump inside my nose for about 3 years septum wall it has been growing slowly also Iv been having drenching night sweats for a while. I seen ENT department in March they said it’s definitely not a polyp but they’re not to worried...
Hi everyone again, As mentioned previously my 16 year old daughter was diagnosed with Hodgkins Lymphoma in December 2023 (Stage 2). She completed 4 months of OEPA and COPDAC this month and we now have to wait until June for the next scans. The mid...
Hi everyone. I was diagnosed with Hodgkin’s Lymphoma last June after 6 months of B symptoms (no lumps). I was told in January I am in complete remission after 2 cycles of BEACOPP and a lymphoma free PET scan then 2 more cycles to be sure. I had bloods...
Hi, it’s been a while since I have posted anything. My 16 year old daughter was diagnosed with HL in December 2023 and I felt like my world had ended. Staging was confirmed as 2 and treatment started shortly after. Midway scans were good showing the metabolic...
