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In terms of gauging how much lymph nodes are reducing, can steroids as part of the treatment produce a false positive? Generally any reduction is positive I would have thought, but if its just the steroid reducing the size, it might be misleading? ...
Hi, I don't really know how to start this or how to write it so I'm sorry if it becomes all muddled up but I'm really hoping I can connect with people who have been or are in a similar situation. Aug 23 I started itching all over my body, to the...
Well my husband has relapsed Hodgkins for the third time. Previously being too unwell for stem cell so another route was taken. Now we embark on Pembrolizumab and then plan whats next. Its been very hard to take in again and we are in quite a bit of disbelief...
Hello, I am Kate, my poor 76 year old husband has been ‘diagnosed’ with suspected HL….this has been ongoing since September last year. An aspiration biopsy of a lymph node in his groin last September was inconclusive as no Reed Steenberg cells found,...
First appointment with consultant. Classic Hodgkin Lymphoma. ABVD treatment in two weeks. PICC line to be fitted. Please share your experiences with this lymphoma and tips for the next few weeks. Apprehensive newbie here. Consultant was very positive...
A week ago my boyfriend was diagnosed with hodgkins, and today he started his first round of treatment. I am finding it really hard to stay strong, and knowing he will struggle with the treatment is really challenging for me to understand as I hardly...
Hello I’m new to the group. Last April my then 10 year old was diagnosed with hogskins lymphoma- our worlds turned upside down overnight after 5 months of chemotherapy in October 2023 the scan showed clarity and his consultant said no more treatment was...
Hi all, my daughter has been diagnosed with HL, initial scans are showing at least Stage 2 but we are waiting on the PET scan results to complete the Staging. We are scared, upset, confused, numb amd many other things. My daughter is 16 and starts chemo...
Hi everyone I am new to this site. I was only diagnosed Thursday.
Hi, I’ve suffered with terrible arm pain after chemo and really struggled to find anything online with people experiencing the same thing! The Dacarbazine really really hurts when it’s administered and I have to have it over an hour and with extra...
