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Hey Everyone, I’m reaching out for some support & knowledge/experiences please. I had 2 x AVBD and 4 x EscBEACOPP for stage 4 classical Hodgkin’s lymphoma. I still have residue disease in my mediastinal mass, so I’m classed as refractory. So disappointed...
Hi all, any advice regarding when to go back to work? I know the fatigue can last typically a year. The complicated part is it’s almost 2 years since I’ve been in work. It took 6 months for a stage 4 Hodgkin’s diagnosis then 2 cycles of ABVD then 4 of...
Hi ive just joined the group. My 10yr old son has been recently been diagnosed with stage 4 Hodgkins Lymphoma and is due to start 5 days straight of chemo for the first time. He has lost a lot of weight very quickly and has almost completely lost his...
Why do I feel some people (friends and family) are just getting in touch to make themselves feel better??? Does anyone else feel this? Also, just because I'm strong and put on a brave face most of the time it doesn't mean this is easy.
Hi all, I’ve read all the information here and taken a lot of comfort in knowing I’m not alone with what feels like a very rare cancer. I’m a 32 year old female with a husband and a beautiful 7 month old son. I’ve recently been diagnosed with Hodgkin...
Hi, Im currently 3cycles in to ABVD (now AVD) for Stage 2 Unfavourable HL, excellent response at interim PET. Im really struggling with the side effects and have been since the start of my treatment, I get terrible nausea/vomiting within an hour of...
Hi, does anyone have experience of HL coming back? I finished my chemo last September had PETs scan in October which was clear, two checks ok since, had a cough start 6 weeks ago which got worse& breathless GP sent me for X-ray I have fluid and partially...
Hi all. New here. I'm still in active treatment for breast cancer. Big stuff done and last CT was OK. Last 4 weeks the back of my neck has become consistently itchy. No rash or dry skin. Itches all day and all night. I know I'm in that stage where...
I have had about 4-5 pea lumps in my neck / around my neck for about 8 months after I had glandular fever 8 months ago. I had blood work, thyroid checks, went for an ultrasound they said they look like normal lymph nodes that are overactive. I was still...
Hi everyone I am new here, my dad was diagnosed with HL Stage 3B after a long period of time taking to diagnose. He has had his first session of chemotherapy and we thought we were heading strong to session 2 - thankfully no nausea, appetite improved...
