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I am looking to chat and share experiences with people diagnosed with stage 4 brain tumours. I was diagnosed middle of September this year having had no symptoms until I had a seizure at home out of the blue. 3 days later I was at King College Hospital...
Hi all, just a little update for anybody interested, and me to look back on! Week 2 - nothing much to report other than everything tasted vile...still does! Things I learnt for me...do not use seasoning /condiments, they taste like poison. Eat different...
HI all New to the group. Was diagnosed with tonsil cancer as primary and had a lump in lymph nodes in neck ( sorry only just learning the cancer lingo ) . I know compared to many i am lucky but it doesnt feel like that today ! Have had...
Hi All, I've seen previous posts re having the vaccine and researched myself with similar outcomes, not much has changed in 3 years! Has anyone learned anything new? We have decided my 23 yr old son (in case he has my dodgy genes) will be having it...
Hi, I've just joined today. My husband was diagnosed with HPV cancer a couple of months ago - secondary is in a lymph node but the primary is undetectable, if it's there at all. We are doing this journey together but I am struggling with dealing with...
Hello. Just completed week 3 of 6 of my radiotherapy for a small tonsil cancer. I’m doing ok but struggling with finding palatable, high calorie foods. Anyone any suggestions ? Thank you so much
Hi, I have been reading the forum for a couple of months due to my Mum being diagnosed with terminal Jaw cancer. She was diagnosed in July and given a prognosis of 1 maybe 2 years. She underwent 10 days of radiotherapy in the last two weeks of August...
Hi My dad has terminal throat cancer and cannot swallow at all, he is ‘fed’ via a PEG tube and Fortisip however he is very frail and in talking to him yesterday he is on 4 small bottles of Fortisip daily which are around 200 Kcal each which does not...
Local SALT team have given me some specific swallowing exercises to help prevent and maintain swallow function before, during and after rt, If anyone would like them posting or sending then please let me know. Each person is different of course and not...
Hello all, I had my mask fitted yesterday and I was given my treatment dates, 12 December to the 23 January. One day a week will be chemotherapy and the rest will be radiotherapy. It's a 46 mile round trip. I'm meeting with a dietitian, a speech therapist...
