Just to say hello :)

He has reached out to the people he was put in contact with.  Sorry, typing and not thinking at the same time!

Hello Aotearoa, welcome to the group. The carers are often overlooked in all this; however, they do play a very large part and support, during treatment and especially during recovery. The food and eating are a big worry when eating becomes difficult, good job he has got a PEG, that will take a lot of that worry away. As for over thinking, I do the same myself, always thinking of the worst that could happen, I sure you will be ok and get over any weather problems. You have come to the right place for support, we are all here to help each other. Any worries or questions you may have, just ask away on here, someone will always help, if they can. All the best to you both.

Regards Ray.

Hello. I’m nearly 8 months post treatment for tonsil & lymph node hpv positive i know that my husband found it a very difficult time, he is extremely self contained & didn’t reach out for help whereas I found this forum to be a lifeline. I had a PEG & am happy to answer any questions. 

Hi Welcome from me. I’m overc4 years post radiotherapy for tonsil cancer with several affected lymph nodes so been there done it so to speak. Don’t overthink. If a day’s treatment is missed due ti bad weather they will just extend the treatment at the end. Ok if yiu csn get a hotel fine but in scheme of things don’t stress. Food the pegs there for a reason if he needs it use it. I got to week 3 eating fairly normal then bang so I had a n g tube fitted. It was a lifesaver. Treatments is hard in our other half’s. We’ve been married 43 years am not proud to say t on occasion s I was down right horrible ti my beloved hubby. Just be aware he might snap at yiu. My blogs below my hubby did a peace on how he felt might help you. It’s October 2018 section. 
ask any questions one of us will try to help. 
Hazel x

Aotearoa said:

've joined for support really

Welcome from me too

A carer's task is just as hard as the patient's but with all eyes turned towards that patient carers are often neglected. 

Stick around here. There's lots of help.

Another place to look is The Swallows Head and Neck Cancer Charity. They have a very active Carers section and a 24hour helpline manned by a real person, not a machine

Just click on the link in red for their website

SWALLOWS

Hi Aotearoa and welcome from me.  I am very similar to your husband.  A year after I started treatment they did find a tumour in my tongue only for it to go again.  I only had surgery and have not gone in for RT at this stage.  Now just over 3 years since I was diagnosed.  A few scares along the way, but living life to the max.  Typing this from Miami before departing for Rio! 

CUP can be very difficult to get your head around.  There are one or 2 of us on here that are CUP and understand the additional strain that put on everything.  Just have faith that it will get better and is a very treatable cancer with a high cure rate.

I always believe that the carer has a tougher time of this journey than the actual patient in many ways.  You will find us supportive with lots of good advice and also an ear when you want to vent!