Treatment Starting Soon

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Hello all,

I had my mask fitted yesterday and I was given my treatment dates, 12 December to the 23 January. One day a week will be chemotherapy and the rest will be radiotherapy. It's a 46 mile round trip. 

I'm meeting with a dietitian, a speech therapist, and so on beforehand. Mostly I'm relieved this waiting time has come to an end and I can move towards ringing that bell. I know it's going to be tough but I'm still excersising for physical fitness and reading for mental strength. I do have bad days, but it passes. 

My main feelings are that I have put an awful lot on my partner, and I have robbed her of her independence. I feel guilty abut that. I have to concentrate on the fact that this will end. 

Steve

  • My main feelings are that I have put an awful lot on my partner, and I have robbed her of her independence. I feel guilty abut that. I have to concentrate on the fact that this will end. 

    You have indeed Steve but she will be fine. We all step up. My husband did even though in my self absorbed hell I was sometimes horrid to him. 
    Your dates are exactly the same as mine. My birthday is January 4 but I have since added an extra one on the 23rd. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Steve Has my hubby said in sickness and jn health he put his head down and got  in with it. I was down right horrible to him many times, I snapped at the slightest thing. Don’t feel guilty she will want to help, take all offers it help you can  get. My trip was similar I had to go into Leeds city which was a nightmare thankfully hubby drove and I did my swallow exercise ir napped in car. It will pass in a flash then it will be concentrate on recovery. Don’t stress about Christmas there’s always next year .

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Steve - good you have a full treatment plan.  You may feel you've stolen her independence, but look at it this way...  You would do the same for her and, with a good following wind, by summer you will be fit enough to regain the ability to do all the things you enjoyed doing together before this blip on life came along.  Finally, one bonus from having cancer, is that you will look at life differently in future and go and do things together now that you may have previously put off for a later date and actually never done.

    Peter
    See my profile for more details of my convoluted journey
  • It will indeed end & then fade into distant memories. Your partner will be there for you as you would be for her. We are all here to answer any questions & pass on our experiences. 

  • I am in same boat Steve with both rt/chemo starting 14/12 and "burden guilt" on my wife too. Thing is that she wants to be there and god forbid if roles were reversed, I would want to do the same. Hope goes well as can be expected.

  • Don’t stress about Christmas there’s always next year .

    Hazel's spot on. I managed that first Christmas dinner and you will too. You'll have had only ten shots so should just be feeling a little scratchy. Christmas next year though will be a blast....mark my words

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Steve

    Great that you have some dates now -  I had 2 x Chemo and 30 x radiotherapy with the mask. The actual treatment was pain free - You will get through it like I did -  With regards to you putting an awful lot on your partner - I'm sure you would do the same for her if the position were reversed. My wife is Great and takes me to appointments to Guild ford (which is a 70 mile round trip) and nags me to take my feeds and meds. Just let her know how much you appreciate her and tell her you care about her. Don't feel guilty -  the Cancer isn't your fault - And I'm sure she doesn't resent helping you. This is a long journey no-one wants to be on - but you are going through it together - 

    Try to stay strong

    Cheers - Steve 

  • All the best butt..soon be back to normal ThumbsupThumbsup