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Hi, so my surgery went ahead on Monday. A lot shorter than anticipated as I didn’t need a tracheostomy or reconstruction flap from arm so over the moon about that. Spent 4 hours in recovery though waiting for my bed. I’m feeling good and doing well...
Hi lovely people. Husband is about 6 weeks post op. hemimandibulectomy with flap. Recovering well. However. (Isnt there always?) the results of the bone biopsy have been delayed and an appointment was made for 3 weeks away in the hope results would...
Hi, I’m Nige, stage 4 neck /tongue cancer - I have been offered a clinical trial to have Pembrulisumab and the trial drug BNT113 - does anyone have experience of these drugs / treatments OR has taken part in clinical trials as I’m in the decision stage...
Hey all I switched dentist yesterday, my previous one refused to prescribe duraphat for years, insisting i do not need it (which means i have been buying it privately) and also suddenly announced he wants to put crowns on every tooth as a preventative...
Hello, I'm new here. My lovely mum has just been diagnosed with an aggressive inoperable tumour which started in her eye socket. Its taken a year to diagnose her after she was originally misdignosed with a non life threatening disease. By the time my...
Hello everyone, My mum was diagnosed with tonsil cancer (T3 N1 M0) in march this year, completed 6 weeks of radiotherapy/chemo on 6th June. She's had a bit of a rough ride with various issues (they said she was in the unlucky 10% that seem to get...
Does anybody have trouble breathing like if I get winded it’s like I can’t breathe if I go for a walk and it I can’t breathe
Had operation on 9/9/25 out hospital Monday just gone very difficult to cope at moment had full largectomy and neck dissection got to go back Monday to see if they caught it all
Hi Its been a year after my husband had a neck dissection and cancer removed from the base of his tongue. He still has numbness on the side of his face/ear/neck. Whats really bothering him is the tight strangling sensation around his throat which is...
my mom was diagnosed with cancer of the tongue 8 years ago. She had a major op to remove half of her tongue and that was reconstructed with tissue/muscle from her arm and then skin graft from her stomach to replace what was taken from her arm. This reconstructed...
