Hello everyone,
My mum was diagnosed with tonsil cancer (T3 N1 M0) in march this year, completed 6 weeks of radiotherapy/chemo on 6th June.
She's had a bit of a rough ride with various issues (they said she was in the unlucky 10% that seem to get all the problems etc)
She had her post treatment MRI scan on Monday, her cancer nurse called today to say that the primary cancer in the tonsil has gone, but there is still some stuff showing up in the lymph nodes. Obviously it's brilliant news that the primary has gone but we are worried about themis activity in the lymph nodes still. They are going to rescan in 3 months.
Has anyone else experienced this? Could it just be scar tissue? Or that's she's got a bit of infection somewhere (she's had countless infections!)
Thank you once again for your input.
Has anyone else experienced this?
Yes. It’s common. I’m betting that the re scan will be negative. PET can’t differentiate between cancer and inflammation sometimes
Lymph nodes can take a long time to respond to RT
I had a hot spot where the original cancer was. Luckily I didn’t have to wait for a rescan but had a biopsy which was negative.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi, definitely good news that the primary cancer has gone. I was in a very similar position. My treatment ended last October and my first post treatment PET scan was in January. This showed ‘avidity’ (another word I wasn’t previously aware of) in a lymph node and I was given a follow up scan and biopsy in May. This showed that the avidity had significantly reduced and unlikely to be of concern. Hopefully it will be the same for your mum, it does seem something that is often experienced. I had a follow up clinical appointment today and the oncologist was very happy with the way things are.
my very best wishes to your mum
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007