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Hi everyone, It has been nine months since my cancer journey started with two operations, neck dissection and base of tongue robotic surgery, followed by six weeks of daily radiotherapy. The journey was not easy and had lots of twists and turns. Please...
Steve: Tonsil Cancer HPV16. Discharged 14 March. Now on regular checks. Well, I finished my treatment on the 20 January, and I was discharged on the 14 March. Since then I have been on follow up appointments. A few weeks ago the consultant didn't...
Hi all could a few of you please give me approx length of time after treatment before taste returns . Think I am being impatient. I am now 2 mths post and food all tastes awful . Met my daughter and went to pub , thought I would try a roast ( Childs portion...
Would anyone have any experience with proton therapy? I took part in the Looc trial. Which was fine. I turned down pathos trial as didn't want more surgery. I have chosen chemoradition treatment but my oncologist has offered me Proton Therapy as...
I am seeing my proton radiologist 1st time Monday. Almost 8 weeks after jaw, free flap operation and lymph involvement. Girlfriend has contracted covid and isn't really taking any precautions. Will also be in car on way to 1st meeting for 3 hours. ...
Good Morning Folk. Not been on in a while but just need to enquire, well maybe seek some reassurances. I am now 9 weeks post treatment and have managed to reduce fentanyl to 12 mcg. These past two weeks I have felt physically and emotionally shocking...
Challenges coming thick and fast...mouth and lip blisters hampering eating...Oramorph and Caphosol supplied ...as ever Ninewells support teams have been brilliant...nothing too much trouble....Sound advice from Gemma (Macmillan)...any problems? let the...
Hi did anyone else have problems once skin/flesh was taken from inside of arm above wrist to rebuild tongue? my partner has spasms going up his arm. Physio has been waste of time and after scans, X-rays & electrode recently it sounds like they may at...
Greetings All, I have not logged in for a while. I am now 5 weeks post treatment. HPV on the right side of the neck (lymph nodes) and the right tonsil. Status to date: teeth and gums very sore on the back right side, food mostly still tastes awful,...
So writing this in the RT waiting room. Day 3 week 2. had a bad weekend post chemo 8 days ago, once the anti - sickness drugs finished, I went downhill fast, couldn’t eat or drink. Became dehydrated and was readmitted to hospital for IV yesterday. Didn...
