Taste

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Hi all could a few of you please give me approx length of time after treatment before taste returns .  Think I am being impatient. I am now 2 mths post and food all tastes awful . Met my daughter and went to pub , thought I would try a roast ( Childs portion) just to see if it tasted as my mind was telling me it should .  One small bite of potato , Yorkie  , carrot and turkey all washed down with water and each mouthful tasted awful . 
Diddnt finish a fraction of child size meal ( dog is loving me experimenting) .  Everything else seems to be progressing ok but miss food . Alan 

  • Hi Alan

    I had the exact same experience. Tucked into a juicy sirloin steak at 12 weeks and it tasted of nothing

    Six months before most food resembled the taste I remembered, a year before I was happy with it 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Alan, two months is still early really  in recovery terms. Unfortunately it can take a good while for things to improve, but they will with time. I do remember dreading meal times, because it was such a chore to eat, when everything tasted so bad. I remember the first thing that tasted how it should was poached egg on toast, after that things gradually got better. Just keep trying different foods, you will get there.

    Ray.

  • Hi Alan as others  have said 2 months is early  although you might not think it at the moment. Best advise I can give you is food is fuel snd eat to live not live to eat.
    I got very little pleasure from food for a good year. It does get better just takes time. Sweet stuff came back to me first I wasn’t a sweet person before treatments. I’m slightly different as I had accentuated taste I can still identify subtle changes to food stuff even now. But I’m living a fab life snd can eat most things apart  ftom spicy. Meats in first year are hard potatoes difficult sweet potato easierI had a small plate of Christmas dinner 4 months  after treatment I ate   Just give it time. Treatment s pretty brutal but it has a brutal job to do. 

    https://www.yumpu.com/en/document/view/66263025/cookbook-by-andrew-gaylor-head-and-neck-cancer-survivor-2022

    this  cook book might help give it a read. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Alan 

    I know exactly how you feel  I had no taste and no saliva for almost 6 months. I lived on tomato soup,custard and fortisip for weeks and they tasted of nothing but it was fuel.

    After 6 months taste started to return slowly, Sweet followed by spicy 12 months it was nearly normal though some things I enjoyed do nothing for me (porridge, Boiled potato) now spicy potato wedges had my first steak 2 weeks ago and now my Guinness taste good.

    I thought my taste was never going to return so bear with it  It will return. I know it is hard to be patient.

    I am now 15 months post RT and apart form very little saliva and some facial paralysis life is quickly returning to new normal Life is good again

    Ivan

  • Thanks everyone for your replies. As I am feeling much better than the few weeks after treatment I am expecting everything to rapidly improve but that is not happening . I have a more realistic expectation now for my taste . Glad the guiness tasted good Ivan , I tried a beer yesterday took couple of sips and left it . 

  • Alan I didn't have a drink for most of 2022 It all tasted horrible but good now  I have stopped the fortisip and substituted it with Guinness  nearly as many calories and more pleasant to take..It does get better.

    Ivan