Hi all could a few of you please give me approx length of time after treatment before taste returns . Think I am being impatient. I am now 2 mths post and food all tastes awful . Met my daughter and went to pub , thought I would try a roast ( Childs portion) just to see if it tasted as my mind was telling me it should . One small bite of potato , Yorkie , carrot and turkey all washed down with water and each mouthful tasted awful .
Diddnt finish a fraction of child size meal ( dog is loving me experimenting) . Everything else seems to be progressing ok but miss food . Alan
Hi Alan
I had the exact same experience. Tucked into a juicy sirloin steak at 12 weeks and it tasted of nothing
Six months before most food resembled the taste I remembered, a year before I was happy with it
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Alan, two months is still early really in recovery terms. Unfortunately it can take a good while for things to improve, but they will with time. I do remember dreading meal times, because it was such a chore to eat, when everything tasted so bad. I remember the first thing that tasted how it should was poached egg on toast, after that things gradually got better. Just keep trying different foods, you will get there.
Ray.
Hi Alan as others have said 2 months is early although you might not think it at the moment. Best advise I can give you is food is fuel snd eat to live not live to eat.
I got very little pleasure from food for a good year. It does get better just takes time. Sweet stuff came back to me first I wasn’t a sweet person before treatments. I’m slightly different as I had accentuated taste I can still identify subtle changes to food stuff even now. But I’m living a fab life snd can eat most things apart ftom spicy. Meats in first year are hard potatoes difficult sweet potato easierI had a small plate of Christmas dinner 4 months after treatment I ate Just give it time. Treatment s pretty brutal but it has a brutal job to do.
this cook book might help give it a read.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Alan
I know exactly how you feel I had no taste and no saliva for almost 6 months. I lived on tomato soup,custard and fortisip for weeks and they tasted of nothing but it was fuel.
After 6 months taste started to return slowly, Sweet followed by spicy 12 months it was nearly normal though some things I enjoyed do nothing for me (porridge, Boiled potato) now spicy potato wedges had my first steak 2 weeks ago and now my Guinness taste good.
I thought my taste was never going to return so bear with it It will return. I know it is hard to be patient.
I am now 15 months post RT and apart form very little saliva and some facial paralysis life is quickly returning to new normal Life is good again
Ivan
Thanks everyone for your replies. As I am feeling much better than the few weeks after treatment I am expecting everything to rapidly improve but that is not happening . I have a more realistic expectation now for my taste . Glad the guiness tasted good Ivan , I tried a beer yesterday took couple of sips and left it .
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