Challenges coming thick and fast...mouth and lip blisters hampering eating...Oramorph and Caphosol supplied ...as ever Ninewells support teams have been brilliant...nothing too much trouble....Sound advice from Gemma (Macmillan)...any problems? let the teams know...if they don't know about it they cannot fix it.
Hi Peter That’s the right advise if they don’t know they can’t prescribe the right stuff. I remember the end if week3 only too well. That weekend was my worst inhad ng tube fitted Monday I went from eating to not in a matter of days ,so if you’ve a peg best advise is use it when you need to. Here if you need any advise.
I had gelclair for my ulcers prescribed as well.
Hazsl
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Hazel...PEG pre fitted... now using PEG food alongside soups/scrambled eggs and soft desserts (Squirty cream)...biggest concern now is constipation due to oral morphine use.
Peter
Hi laxido or movicol one sachet a day was ok for me but sone need 2 a day ir if really impacted a 6 sachet boost. Yiu get on prescription.
please don’t get constipated it only adds to the symptoms.
yiu csn buy over counter laxido until yih get script issued
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Hazel
Got some in the Med box....taking 1 a day...will up the dose and place an order.
Peter
Two a day for me.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Sounds yummy.
Glad you feel better.
I can tell you that over four years on the smell of Laxido takes me back to treatment days....
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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